alsAs many of you will know and have followed our story, my Daughter became ill over 4 years ago with ME. She is now diagnosed as Severe ME, Fibromyalgia plus other conditions. I am feeling Let Down Again, by medical professionals. This morning when sorting out her morning medication, it suddenly hit me that we […]
Day 6 of ME Awareness week today I am writing ME Awareness Week 2019 – A Letter To C. I have not done this for a while and although say it to her all the time. It is nice to read it as well. ME Awareness Week 2019 – A Letter To C Dear C […]
Day 5 of ME Awareness week I am going to talk about ME Awareness Week 2019 – Extra Support our children desperately needs. ME Awareness Week 2019 – Extra Support Education Unlike healthy children, who go to school every day, children with ME or another illness can not have this luxury. C like many other […]
Carrying on my week of posts for ME Awareness Week 2019. Today I am writing ME Awareness Week 2019 – A Parents View, where I share the reality of how a parent of a child with a chronic illness copes. ME Awareness Week 2019 – A Parents View Before ME Struck C has always been […]
Following on with ME Awareness Week, today I am going to talk about medical support. I will be talking about our personal experiences, but unfortunately this is nationwide. The diagnosis ME is very hard to get a diagnosis for, which is understandable. Usually after 3 months of getting no better and various tests have been […]
As you will have seen from my post yesterday, this week is ME Awareness week, and everyday this week I will be posting a different post regarding ME. Yesterday I wrote about what ME is. Today I am sharing our story of how ME came into our lives. Before ME struck She had just finished […]
ME Awareness Week 2019 runs from the 6th to 12th May, you can find out more about it on the ME Associations website ME Awareness Week 2019 As many of you know my Daughter C has been unwell since 2015. Finally being diagnosed with ME and Fibromyalgia, plus other conditions. This week I am going […]
Another month is over and time to welcome in a new month. What a month April has been for us. It has certainly been a rollercoaster of months. So time to say goodbye April – hello May. Starting with C There has been no change in her this month. She is still bedbound and still […]
Well we are into April already, how is the year going so fast. It can only mean one thing and time for my monthly update post. Where I wave goodbye to March and look ahead to April. I am glad to be saying goodbye to March. Especially the last few days which as many other […]
As you will all know by now, my Daughter C has a chronic illness. She is currently still bedbound due to a number of reasons. We have been referred to physiotherapy, but due to how bad she currently is, we have had to postpone it as she is just too ill. But we have talked […]
