alsAs many of you will know and have followed our story, my Daughter became ill over 4 years ago with ME.  She is now diagnosed as Severe ME, Fibromyalgia plus other conditions. I am feeling Let Down Again, by medical professionals. This morning when sorting out her morning medication, it suddenly hit me that we have been let down again.  This should not be a surprise really. Also for you as I have written about this many times before. Medical Professionals When C first became ill we had a lovely (at first) Consultant who seemed to generally care about C. …

As you will have seen from my post yesterday, this week is ME Awareness week, and everyday this week I will be posting a different post regarding ME. Yesterday I wrote about what ME is.  Today I am sharing our story of how ME came into our lives. Before ME Struck She had just finished Primary school and was looking forward to starting her new Secondary school in the September.  She was moving there with friends and they were all excited.  During the summer holidays we had spent a fortune on her uniform and accessories. As a treat my parents…