As you will have seen from my post yesterday, this week is ME Awareness week, and everyday this week I will be posting a different post regarding ME. Yesterday I wrote about what ME is. Today I am sharing our story of how ME came into our lives.
Before ME struck
This is one of my favourite pictures of C. It was taken about 3 months before she became ill. Totally natural she was sitting there and I called her name and just clicked the camera. As you will see she looks like any normal happy 11 year old.
She had just finished Primary school and was looking forward to starting her new Secondary school in the September. She was moving there with friends and they were all excited. During the summer holidays we had spent a fortune on her uniform and accessories.
As a treat my parents booked to take her on a Disney Cruise around the Med, which was Disneys first Med Cruise. She was so excited. As work commitments got in the way for us, we took her on a mini break to Paris which she loved.
The first signs
When she returned from the Cruise with my parents, my Mum said she is not well, she had come down with something last night. High temperature, sore throat etc. We all just thought it was a bug and had no idea that this was just the start. I helped her up to bed and dosed her up with Calpol, and let her sleep.
She started to recover and luckily was well enough by the time the new term started.
Starting Secondary School
She settled in very well to her new school. Enjoying the extra freedom this allowed her. As she went to school and back by bus. Trips into town at the weekend with friends. Even wearing mascara to school. I remember one morning the world ended as she could not find her mascara and of course it was Mums fault, so ended up giving her my expensive one to keep the peace.
She was doing well in lessons and in the top set of most subjects, her teachers loved her, she never got into trouble. Life was going great.
She got tired more than usual, and started getting more headaches. So I took her to the opticians and her sight had not changed. Some days she would ring or text me to pick her up from school as she was just too tired to walk around to the bus stop.
I would joke with her about my school run days being over, but would always pick her up. Stupidly we thought it was just getting used to the new school and work load.
When the time the Christmas holidays started C was exhausted, she just had no energy. Even cancelling trips out with her friends. Again we just thought it was because it was the end of term. Looking back all the signs were there.
On 31st December 2015 we went to a friends New Years Eve party, luckily it was a small party. At 11.45pm C came up to me looking awful saying her head and legs were hurting and she collapsed down onto the settee. This was the moment our lives changed forever.
Tomorrow I will talk about the medical side.
You can read more about our journey you can find all about it here