Living with A Chronic Illness

Blogtober Day 5 – Education

Blogtober Day 5 – Education where I am going to talk a little differently to how I have in the past.

As many of you know C (my daughter) has a chronic illness, and for the past 4 years has been very ill.  She has been bedbound and unable to even carry out a little bit of tuition.

Move forward to today, she is coming up 16 and in her GCSE year.  As she has missed so much I never thought this would be an option for her. I was wrong.

She loved school

C always loved school, from her first day in reception right up until she became ill.  I never had to worry she was pretending to be ill to stay off school.  I could ask her if she felt well enough to go in, usually she would say she would try.  If she said no I knew she was ill.

She was in all the top groups, loved English, History and Art, hated Maths and still does.  But this only because everything else comes easy and she does not have the confidence in Maths.  Although she was in the top group for that as well.

Since becoming Ill

She has tried so hard to go in, all the way through these past years all she has said is she wants to be normal and go to school.  C has tried so hard to manage tuition and at the end of the last school year, her tutor would pop in for 5 minutes on a Friday to say hello.  She was too ill to get up and she would be in bed looking so miserable and in pain.

She suffers 24/7 migraine type headaches, and has a condition also called papilledema which is being helped with medication.

New School Year

We had a meeting in her school with the heads of KS and head of tuition services.  They are all lovely and been so supportive all the way through our journey.  C managed to attend the meeting as well, which was the first time in a long time.

They are putting her in for GCSE and also putting a special dispensation in place so she can use a laptop, take breaks etc throughout the exam.

Tuition is 1 hour 3 times a week at home.  Once she can do the full 3 hours of tuition, we can then move the tuition to a room in school and progress from there.  They understand the illness and that she can crash, they let C lead with how she is feeling and coping.

So far she has managed every tuition and for the full hour.  We have another meeting in a couple of weeks before half term.  We are hoping that tuition will then be in school from there on.

If you have a child suffering an illness, there are supportive teams out there who will work on the best method for your child.  They are not the enemy and will give so much support.

Blogtober Day 5 - Education

About Author

I am Sam and owner of StressedMum, I hope you enjoyed reading my latest post, I always love to read comments from my readers


  • Kate Holmes
    5th October 2019 at 6:31 pm

    I am so pleased you are getting good support. I think the pattern varies from school to school to be honest. You work hard and love your daughter so much and she has such clear potential. It makes me cross that this dopey illness is causing you both such grief and hassle. If she is like you, she will have inner strength and I am excited to see what she does next #Blogtober19

    • admin
      5th October 2019 at 6:47 pm

      She really is trying so hard and is determined to succeed and get back into school, she is suffering today but has shown me another great drawing he has completed. She has even managed gto go out with my parents for a meal as we are going out, instead of a takeaway in bed. So proud of how hard she is trying x

  • Kim Carberry
    5th October 2019 at 7:37 pm

    Oh well done C. It sounds like things are going well. It sounds like she is getting the best support! I am so pleased for her and you! Good luck C x

    • admin
      6th October 2019 at 6:33 am

      Thank you small steps but a huge difference now keeping everything crossed


Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.