You will remember back in January and February, I spoke about our fight for an EHCP. Like many other children, C has been let down and discriminated against, because she has a chronic illness. Is this fair? Well the answer is no, as every child deserves an education.
Summary of our journey – part 1
In January, I wrote a post when your child is let down with education – part 1. Im this post I explained on the beginning of C’s illness and her education over the past few years, or lack of it in recent years.
In October 2019 during a meeting with her school and tuition team, I spoke about an EHCP for 2020 as this is when she would be facing sixth form or college. I was told (and this is in the minutes of the meeting), that it was all in hand. In April 2020 I chased this and found nothing had been done. We were told we were on our own and to apply for one.
We did this and it was refused as she did not have issues to warrant one. We put in for an appeal, getting legal advice which cost a fortune, the date was set. Just before this date in November 2020 our LA pulled out and agreed to go to panel again. We had meetings and the panel refused her application.
In February I wrote part 2 or our battle. I had received the evidence they made their decision on (which most of it was laughable). With this in had I set to battle again, the co ordinator was lovely and supportive. With her help and the help of one of the others who had given a report, we set to battle again. In this post I wrote what your next steps are and how to move forward. The multi agency meeting which I thought would be a waste of time, was very helpful and left me feeling more positive.
After the multi agency meeting, I was feeling much more positive, there was only three of us in the meeting but we went through everything. Also the other two were coming up with suggestions I had not thought about. I was then told that it would have to go to panel again. I emailed on 9th April to see if there was any updates and had a reply last Friday to say she was just going into a meeting but would ring me after.
My phone rang and I was ready for the next battle, it had not gone to panel yet, but she spoke to her Manager and with all the evidence it was agreed we would get our EHCP. We are now just waiting for the draft to come through.
It is emotional, lonely and scary facing this alone, you see others getting the education they deserve, but your child who is ill or needs support it is not that easy. I hope with these posts, I have shown you are not alone, to keep fighting and tips on how to fight. But never give in, if you are in the right you will get there.
Have you any stories or tips to help those going through this?