Last week you will have seen my post when your child is let down with education – part 1. We are now a week gone and although I am still raging, and a Mum on a mission. I am also calmer and ready to battle, which is why I am writing Part 2.
In part 1 I was raging when I wrote the post, that again we had been let down. I was emotionally and how unfair it all was. The support I received was amazing. The sad part is we are not an isolated case, this is going on in every part of the UK. Why though, why is it that a child who has an illness, is not worthy of what a child without an illness gets. They never asked for this, they just want to be ‘normal’. Is that really too much to ask.
Last week, I shared how we got to this point, which is a similar story to a lot of people. This week I am sharing the next step in our journey, and one a lot of people will go through.
The Calm Before The Storm
This is the part I am calling the calm before the storm, the part where you get all your support and evidence in one place. If you are facing this, your next steps are
1. Collate All Evidence
Speak to the person who you have been dealing with and ask for the following to be sent to you
- All evidence and input used during the panel meeting – this should include all reports from the various agencies and professionals
- A copy of the panel meeting notes
Once you have the above read through carefully and do not get upset or angry at the complete joke of what is written. In the evidence I received, only one of the professionals actually wrote what we had discussed and what C would need. The others were not talking about my child.
There was so many inconsistencies and I will be pointing each and every one out to them. Also out of 17 people who were present at the panel meeting only 1 person has ever met or spoken to C.
2. Take Notes
Once you have the reports through, start noting down all the inaccuracies. This is important as there is no way you will remember all of these. Look up things you do not understand, for example I kept seeing NEET and had to look up as had no idea what it meant. It means Young People Not in Education, Employment or Training. Not through C’s choice they stopped the education.
3. Getting Ready For Next Step
There is apparently going to be a Multi Agency Meeting to discuss some care plan or something for C. Luckily, I can be part of this meeting, I have also contacted C’s Consultant who has agreed to be part of the meeting as well.
I have also contacted the lovely legal lady who helped us prepare for our EHCP appeal. The support letter she wrote on our behalf states various sections of an act where C should get an EHCP. Yes I will be bringing this to the meeting and discussing each one.
I have also contacted my MP, as surely this is not right to treat children in this way.
Next post, I am going to predict now it is going to be a while until we hear about the meeting. I will share the different points in the act that leads to C and others in her position to be awarded an EHCP.
Remember you are not alone, if you are facing this I am happy to talk. I am not going to sit and go through this quietly now, we have been asking for this for 16 months now.