Living with A Chronic Illness

When Your Child Is Let Down With Education – Part 2

Last week you will have seen my post when your child is let down with education – part 1.  We are now a week gone and although I am still raging, and a Mum on a mission.  I am also calmer and ready to battle, which is why I am writing Part 2.

In part 1 I was raging when I wrote the post, that again we had been let down.  I was emotionally and how unfair it all was.  The support I received was amazing. The sad part is we are not an isolated case, this is going on in every part of the UK.  Why though, why is it that a child who has an illness, is not worthy of what a child without an illness gets.  They never asked for this, they just want to be ‘normal’.  Is that really too much to ask.

Last week, I shared how we got to this point, which is a similar story to a lot of people. This week I am sharing  the next step in our journey, and one a lot of people will go through.

The Calm Before The Storm

This is the part I am calling the calm before the storm, the part where you get all your support and evidence in one place.  If you are facing this, your next steps are

1. Collate All Evidence

Speak to the person who you have been dealing with and ask for the following to be sent to you

  • All evidence and input used during the panel meeting – this should include all reports from the various agencies and professionals
  • A copy of the panel meeting notes 

Once you have the above read through carefully and do not get upset or angry at the complete joke of what is written.  In the evidence I received, only one of the professionals actually wrote what we had discussed and what C would need.  The others were not talking about my child.

There was so many inconsistencies and I will be pointing each and every one out to them. Also out of 17 people who were present at the panel meeting only 1 person has ever met or spoken to C.

2. Take Notes

Once you have the reports through, start noting down all the inaccuracies. This is important as there is no way you will remember all of these.  Look up things you do not understand, for example I kept seeing NEET and had to look up as had no idea what it meant.  It means Young People Not in Education, Employment or Training.  Not through C’s choice they stopped the education.

3. Getting Ready For Next Step

There is apparently going to be a Multi Agency Meeting to discuss some care plan or something for C.  Luckily, I can be part of this meeting, I have also contacted C’s Consultant who has agreed to be part of the meeting as well.

I have also contacted the lovely legal lady who helped us prepare for our EHCP appeal.  The support letter she wrote on our behalf states various sections of an act where C should get an EHCP.  Yes I will be bringing this to the meeting and discussing each one.

I have also contacted my MP, as surely this is not right to treat children in this way.

Next post, I am going to predict now it is going to be a while until we hear about the meeting.  I will share the different points in the act that leads to C and others in her position to be awarded an EHCP.

Remember you are not alone, if you are facing this I am happy to talk.  I am not going to sit and go through this quietly now, we have been asking for this for 16 months now.

When Your Child Is Let Down With Education - Part 2

About Author

I am Sam and owner of StressedMum, I hope you enjoyed reading my latest post, I always love to read comments from my readers


  • Claire Lomax
    4 February 2021 at 4:35 pm

    You are amazing. I know how hard and unfair this whole process is from my experience in a special school and supporting a SENCO in school. I hope the multi agency meeting goes well, its great the consultant will be supporting x

    • admin
      4 February 2021 at 8:44 pm

      It is hard and very unfair, and sadly very common, we will hopefully get some sort of education and support for her soon

  • Dawn and Bella at Dear Mummy Blog
    4 February 2021 at 5:00 pm

    Sounds like a complete nightmare and that you’ve been through the mill with this. Can’t imagine the amount of stress it’s caused and continues to have. Hope it comes to a resolution soon x

    • admin
      4 February 2021 at 8:43 pm

      Thank you I think this is going to drag on but hopefully with a better outcome

  • Sarah Bailey
    4 February 2021 at 11:13 pm

    This is a great post and I think it will help many who are going through the same thing. However, it is such a shame you are having to go through all this for C.

    • admin
      5 February 2021 at 1:18 am

      Thank you, I think it is one of these things were you can suddenly find yourself in this situation and have no idea what to do. It can also be a lonely experience so by sharing our journey I hope it can show others they are not alone. Plus also a check list of what they need to do

  • Rhian Westbury
    5 February 2021 at 10:22 am

    You guys are doing amazing not letting C’s education going and carrying on to fight for her and I really hope that the next step gets sorted in the right way x

    • admin
      5 February 2021 at 10:30 am

      Thank you, my friend went through exactly the same and won this time round so hoping we will get there

  • Anosa
    6 February 2021 at 7:14 am

    It is heartbreaking that a lot of kids like C are experiencing this unfairness with their education. Hope the MP can help.

    • admin
      8 February 2021 at 10:18 am

      It is totally unfair, and something that needs to be highlighted, our MP has been in contact 🙂

  • Jennifer Gladwin
    7 February 2021 at 10:38 am

    I’m so sorry C is being treated so unfairly. This is so useful so anyone going through something similar. I wouldn’t even know where to start!

    • admin
      8 February 2021 at 10:16 am

      Honestly it is a nightmare, and this is where they have the advantage as you would not know and just take their decisions a lot of the time

  • jacqui redmond
    9 February 2021 at 11:18 am

    I would have hoped there would be an understanding of C’s needs especially as they have experience and understanding because of our battle. I’m so sorry it’s just not right that still post 16 children with medical needs are treated so unfairly.

    • admin
      9 February 2021 at 12:46 pm

      You would have thought they would, I did nearly mention you when speaking to Caroline and that C is exactly the same as R. I am currently waiting on hearing about this multi agency meeting, I have got a meeting with our MP now end of Feb and Dr B is on board. It is nothing but total battles at the moment


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