Many of you are aware of my Daughter illness, and the various fights and struggles we have gone through. If like us you hit brick wall after brick wall. You pick yourself up ready to push on, it is unfair that a child with an illness is discriminated against. Yes I have used the word discriminated as it is true. Especially when your child is let down with education. What do you do when your child is let down with education?
A quick back ground of our story
C became ill with ME five years ago, she had just started Secondary school and had completed one term. She got ill after have Glandular Fever. I have documented our journey, from her first becoming ill and the various ups and downs she has faced.
With ME, you suffer a variety of symptoms, very much like those of long covid which is talked about a lot at the moment. This means her education suffered. At the start learning about her illness, and how to manage her daily living and education.
Education at the start of the illness
I can not fault the support we had from school, and other professionals in helping C maintain an education. Everyone knew how much she wanted an education, how she just wanted to be normal. We tried various methods so she could maintain some forms of education.
In her times when she was too ill, the Deputy Head or Head of Year would email or ring just to check in how we were. As she grew older, we were passed to a different school for home and in school tuition. Again depending on how C felt she would have her lessons in school or at home.
In October 2019, we had a meeting in school, this was something we had regularly to see how C was doing. At this meeting which was documented (I do have the minutes of the meeting saved), I discussed an EHCP, which would cover her for education at the end of year 11. I was told that it was in hand.
In April 2020, I chased various people regarding this as had heard nothing. Around the same time, we were told no further education for that school year.
Putting in an EHCP
We put our application in for an EHCP to provide C with education from this school year. Like with many others I know it was refused. The reasons laughable, we took legal advice and put in an appeal. The hearing date for this was 25th November, which our Local Authority backed down and agreed to review.
After various meetings (by telephone and zoom) all reports were put in, and the panel meeting was this Tuesday. I was promised by the coordinator of this that she would ring me that day with the outcome. This was mainly, as I had pointed out they had gone over the decision date.
They have refused the application, stating that C does not need this. You can imagine how this went down. I have requested ALL the supporting evidence and the notes from the panel meeting.
So far we have received copies of the evidence, some of it is laughable.
We can fight this together
If you are facing the same or similar battles, we are in this together. I will be writing a second post on what they are offering, why they think she is not suitable for an EHCP and why she is and the support she and many others need.
If you are going through this or know someone who is, share this post. Let’s make a stand I know I am not alone and it is unfair a child who has an illness has to fight for every little thing. Let us get this message out, our children deserve what all well children receive automatically.