Living with A Chronic Illness

When Your Child Is Let Down With Education – Part 1

Many of you are aware of my Daughter illness, and the various fights and struggles we have gone through.  If like us you hit brick wall after brick wall.  You pick yourself up ready to push on, it is unfair that a child with an illness is discriminated against.  Yes I have used the word discriminated as it is true.  Especially when your child is let down with education. What do you do when your child is let down with education?

A quick back ground of our story

C became ill with ME five years ago, she had just started Secondary school and had completed one term.  She got ill after have Glandular Fever.  I have documented our journey, from her first becoming ill and the various ups and downs she has faced.

With ME, you suffer a variety of symptoms, very much like those of long covid which is talked about a lot at the moment.  This means her education suffered.  At the start learning about her illness, and how to manage her daily living and education.

Education at the start of the illness

I can not fault the support we had from school, and other professionals in helping C maintain an education.  Everyone knew how much she wanted an education, how she just wanted to be normal.  We tried various methods so she could maintain some forms of education.

In her times when she was too ill, the Deputy Head or Head of Year would email or ring just to check in how we were.  As she grew older, we were passed to a different school for home and in school tuition.  Again depending on how C felt she would have her lessons in school or at home.

Moving Forward

In October 2019, we had a meeting in school, this was something we had regularly to see how C was doing.  At this meeting which was documented (I do have the minutes of the meeting saved), I discussed an EHCP, which would cover her for education at the end of year 11. I was told that it was in hand.

In April 2020, I chased various people regarding this as had heard nothing.  Around the same time, we were told no further education for that school year.

Putting in an EHCP

MacBook Pro, white ceramic mug,and black smartphone on table

Photo by Andrew Neel on Unsplash

We put our application in for an EHCP to provide C with education from this school year.  Like with many others I know it was refused.  The reasons laughable, we took legal advice and put in an appeal.  The hearing date for this was 25th November, which our Local Authority backed down and agreed to review.

After various meetings (by telephone and zoom) all reports were put in, and the panel meeting was this Tuesday.  I was promised by the coordinator of this that she would ring me that day with the outcome.  This was mainly, as I had pointed out they had gone over the decision date.

They have refused the application, stating that C does not need this. You can imagine how this went down. I have requested ALL the supporting evidence and the notes from the panel meeting.

So far we have received copies of the evidence, some of it is laughable.

We can fight this together

If you are facing the same or similar battles, we are in this together.  I will be writing a second post on what they are offering, why they think she is not suitable for an EHCP and why she is and the support she and many others need.

If you are going through this or know someone who is, share this post.  Let’s make a stand I know I am not alone and it is unfair a child who has an illness has to fight for every little thing. Let us get this message out, our children deserve what all well children receive automatically.

When Your Child Is Let Down With Education

About Author

I am Sam and owner of StressedMum, I hope you enjoyed reading my latest post, I always love to read comments from my readers


  • LaaLaa
    29 January 2021 at 10:23 am

    Oh my goodness, the system can be shocking at times but I’m so glad you took a stand and fought. Which can be tiring in itself with the knock backs. I’ll definitely remember this post!

    • admin
      29 January 2021 at 10:36 am

      We are still fighting, we still have no education

  • Yeah Foodie
    29 January 2021 at 9:07 pm

    Seems like you both are going through a tough journey and glad you have shared this for someone else so that they understand that they are not alone

    • admin
      31 January 2021 at 9:59 am

      It is hard, but I am going to document everything so others have a reference or someone they can reach out to going through the same

  • Kira
    29 January 2021 at 11:07 pm

    Oh wow what an absolute roller coaster you have both been on . Sending all my love and definitely fight it til the end xx

    • admin
      31 January 2021 at 9:58 am

      I intend to and going to document so others can see they are not alone

  • Valerie
    30 January 2021 at 12:41 am

    I can understand the stress you’re going through My youngest has special needs and for many of his early years in school we had to fight for everything and the annual IEP meetings were awful.

    • admin
      31 January 2021 at 9:57 am

      So sorry you have struggled as well, it is so unfair x

  • Rhian westbury
    30 January 2021 at 10:14 am

    I really struggle to understand how they have refused the application, I’ve never met or seen C but just from your words I can see that traditional education just isn’t right for her, but she wants to learn x

    • admin
      31 January 2021 at 9:57 am

      I struggle to understand as well, I am still waiting on the panels notes to see why they decided this and am then going to battle again

  • Mellissa Williams
    30 January 2021 at 5:32 pm

    Good luck in fighting this. It must be so frustrating and so disheartening for you and her when you know its the right thing

    • admin
      31 January 2021 at 9:56 am

      It is, we haven’t told C yet as it will break her this is all she wants

  • Nayna Kanabar
    31 January 2021 at 9:50 am

    How awful that you are having a tough time just getting schooling for your child. I hope someone somewhere hears your case and helps you out.

    • admin
      31 January 2021 at 9:55 am

      It has been a very hard battle, and thought we had it sorted and now have to pick up and carry on for something that she should have automatically

  • Anosa
    31 January 2021 at 11:03 am

    So sorry to hear this and so sad for C as this is not fair, this is a bullshit decision, and hope it can be overturned.

    • admin
      1 February 2021 at 10:42 am

      Thank you, and it is a bullshit decision. I am sharing this process now to let others know they are not alone

  • Rebecca Smith
    31 January 2021 at 3:14 pm

    I am so sorry that C’s application was refused and I wish you well as you continue to battle to get her what she needs.

    • admin
      1 February 2021 at 10:41 am

      Thank you am so annoyed that they pulled out of the appeal, so need to see their notes to see why, which I am still waiting on

  • Rachael
    2 February 2021 at 11:28 am

    This sounds absolutely horrific and so, so stressful for you all! I can’t imagine the hoops you have to go through and the battles you’re having to have, it’s so unfair.

    • admin
      2 February 2021 at 11:54 am

      It is horrific, I have just received the panel notes and omg I am fuming I have never seen so much utter garbage in my life


Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.