ME Awareness Week – Our Story

ME Awareness Week - Our Story

As you will have seen from my post yesterday, this week is ME Awareness week, and everyday this week I will be posting a different post regarding ME. Yesterday I wrote about what ME is.  Today I am sharing our story of how ME came into our lives. Also today is #MillionsMissing the day where the world comes together to share how many lives are struck with this illness.

Before ME struck

c

C had just finished Primary school and was looking forward to starting her new Secondary school in the September.  She was moving there with friends and they were all excited.  During the summer holidays we had spent a fortune on her uniform and accessories.

As a treat my parents booked to take her on a Disney Cruise around the Med, which was Disneys first Med Cruise.  She was so excited.  As work commitments got in the way for us, we took her on a mini break to Paris which she loved.

The first signs

This is where our story starts. She returned from the Cruise with my parents, my Mum said she is not well, she had come down with something last night.  High temperature, sore throat etc.  We thought she had a bug having no idea that this was just the start.  I helped her up to bed and dosed her up with Calpol, and let her sleep.

She started to recover and luckily was well enough by the time the new term started.

Starting Secondary School

She settled in very well to her new school. Enjoying the extra freedom this allowed her.  As she went to school and back by bus.  Trips into town at the weekend with friends.  Even wearing mascara to school.  I remember one morning the world ended. She could not find her mascara which of course was Mums fault. I ended up giving her my expensive one to keep the peace.

She was doing well in lessons and in the top set of most subjects, her teachers loved her, she never got into trouble.  Life was going great.

We did notice that she got tired more than usual, and started getting more headaches.  I took her to the opticians and her sight had not changed.  Some days she would ring or text me to pick her up from school as she was just too tired to walk around to the bus stop.

I would joke with her about my school run days being over, but would always pick her up.  Stupidly we thought it was just getting used to the new school and work load.

Christmas 2015

When the time the Christmas holidays started C was exhausted, she just had no energy.  Even cancelling trips out with her friends. Again we just thought it was because it was the end of term.  Looking back all the signs were there.

On 31st December 2015 we went to a friends New Years Eve party, luckily it was a small party.  At 11.45pm C came up to me looking awful saying her head and legs were hurting and she collapsed down onto the settee.  This was the moment our lives changed forever, and the start of Our ME Story

We never knew at this stage what ME was, or how an illness could change your life forever.

ME Awareness Week - Our Story

 

 

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12 comments

    1. We had no idea, and thought the tiredness was just a new school and needing the school holidays. I will never forget that moment she collapsed on us

  1. ME is awful isn’t it – I wish more was known about it and how it affects people as I am sure I still get caught by surprise by some of the things it brings with it.

    1. It is awful and it is a shame it is one of those illnesses that is not understood. We are lucky to have a consultant who we have to see privately though who does understand the illness and also listens

    1. Sadly even the medical profession seem to not understand ME. It has been constant battles and something nearly everyday since the beginning

  2. As parents firstly we don’t ever think that such a thing would happen to us, secondly I understand how hard it was to spot the signs although it was there. Glad you are writing about it to share with others.

    1. Unfortunately there is no cure you can recover to an extent but the key is to do things in small doses and try to build up even on good days you cant go out and be normal as this causes another crash

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