It is Tuesday again, you will know by now that it is the day for my Life In A Lockdown Linky post. This is a linky where myself and other bloggers have been posting every week since lockdown first began. Answering set questions of how we found the past week.
It is lovely looking back on how different things were and how we all adapted to lockdown life, and then slowly coming out of lockdown.
I have had a very up and down week, and it has just proved how we are still stuck in lockdown even though we are moving out of it.
If you want to take part in the linky the questions are
1) How are you feeling/coping?
At the moment I am angry, I have mentioned in the past few weeks about C’s jaw as she has TMJ. It is to do with her jaw and it grinds, clicks and locks and is very painful, to the extent she can not eat, sleep or move her jaw, this is also having a combined effect on her ME and she is crashing.
A few weeks ago, I had a nightmare time trying to speak to our GP as nothing we were doing at home was helping and it was getting worse. He firstly told us she had no diagnosis and then refused to do a referral. I am lucky my parents told me to book privately, as she was barely able to eat. Last week I had a text from our GP saying the referral had been made, then a text yesterday saying that the hospital had refused the referral. This is without anyone seeing her.
Friday, we had her private appointment, he is based at the same hospital where we see her ME Consultant. He was lovely and went through everything and got her to try different movements, before saying Mum can you come and stand behind me. He got C to just simply open her mouth, where ours just opens up and down hers wiggled side to side. You could hear the grinding and clicking. He has given her some exercises to do which are easy, and she has to have a completely soft diet for 3 months. If it is worse or no better he will do an MRI and see where the problem is. C felt a lot better knowing it could be helped and has been doing the exercises he has given her.
I am so angry due to the fact not one medical person has seen her, and they have just said no help. I can not describe the pain and discomfort she is in. How she can not eat or sleep and even talking causes her pain. I am angry that you can not get a Dr appointment so that you can be seen in person, and angry that because she was fine 4 years ago and it was just niggly pain, that she should be fine now. What if I had not had my parents to pay for private, what would we do next?
2) What have you been up to over the past 7 days?
Apart from the above, we have been sorting out our lounge, nothing drastic but looks so much better
3) What is your favourite post of the past 7 days (it could be yours or someone else’s)?
I have read some lovely posts, I need to start bookmarking them as my mind just goes blank
4) Do you have any plans for lockdown easing?
Plans to see friends and family, and hoping to get away for a week or so, but we are not booking anything as you just never know what is going to happen
5) What have you bought this week that others might like? (Especially if from a small business.)
New pillows for C, as one of hers has split and no idea how
6) What have you been grateful for over the past 7 days?
My Mum she has been my rock
7) What would you like the future to know about life during a pandemic?
Never take life for granted, be grateful for the little things
8) Anything else you would like to mention?
Keep on going, take one day at a time and we will get through this