For 5 years now C has been ill with a chronic illness, and diagnosed with ME, Fibromyalgia and IIH. This has meant she has lost out on so much, such as her teenage years, her education, life in general.
As many of you will also know from previous posts, she has been having severe abdominal pains. This resulted in her being admitted to hospital in February. She was discharged and having follow-up investigations. We still have no idea what is wrong with her, and everything has stopped due to COVID19.
Life has changed
With the lockdown, everyone has had to change how they live their lives. Families are finding that they are having to work from home. Educate their children while trying to work, and carry on with the daily housework of cleaning, cooking etc.
My Facebook is full of parents moaning about being stuck at home, having plans cancelled as they can not go out. Having to be teachers to their kids. Being stuck at home day after day.
Then there is the other posts from parents of children with chronic illness. These are the posts saying life has not changed, it is just normal living for us.
The posts that I myself find hard and those of other parents is so called friends who did not care this was how we were living for the past few years. The friends who never listened about how worried you were without full education in place and trying to do it yourself while working with their childs illness. These same friends are moaning and complaining about having the kids home and trying to juggle everything. Moaning about having to educate their kids.
What I am trying to say is
Now you have had a taste of life with a chronic illness. It has only been a few weeks and will eventually stop and life will go back to normal. This is daily reality for us for life. If you know someone who has an illness or has family with an illness. Once this is over please remember what you are going through now and are happy it is over, is still going on. Just give them a quick message, send a virtual hug let them know you care.