We have made it through another busy week, and the weekend is just hours away. With schools back and we are back into normal routines, it is time to share how my week has been.
Finally a little bit of good news, instead of my weekly frustrations. On Tuesday I had a phone call from the organisers of the course C is hoping to do. We had to go for an assessment on Wednesday morning, which went well. As far as we could make out it is just waiting for an appointment for interview and paperwork and getting a start date for the course. Nothing is set yet so still not celebrating until we have it in writing and it actually happens.
Yesterday, C had a meeting with her support team, and I also updated them on the above. They are going to talk to them regarding her starting and putting in place her EHCP with them.
Last week, I mentioned about seeing if I could arrange a private appointment to see someone regarding my pain and discomfort. When leaving I asked if they had a gynaecologist and they had an appointment for the next morning which I jumped at.
Saturday morning, I met a lovely Consultant (ok I know I was paying for them to be nice), who listened to me, asked my history and examined me. She agreed on my previous diagnosis from 2 years ago of Endometrial Hyperplasia, and have me a three months supply of two treatments. As it was a private prescription I nearly died when I paid £65 but honestly if it helps it is worth it.
She did speak about doing biopsies at the same time, which when she said could be done under local or general and would require stitches. We agreed to wait until my next appointment in October.
The treatment is not helping yet but hopefully will soon, all I can say is that thank god I did go private as received my referral through today for the middle of January 2022. There is no way I could carry on like this all that time.
When driving home from the meeting with C yesterday, we were chatting and she said they had mentioned CAHMS. I asked her how she felt about trying them again, as we had an awful experience and she refused to go back. She knows someone who had suicidal thoughts and they said go and have a bath and then tea and biscuits and you should feel better. We had a laugh and I asked if she ever had suicidal thoughts which she replied yes, and then said they are only thoughts I wont do it. This shocked me and scared me, she knows she can talk to me about anything and last night I had a chat saying she can talk to me or my Mum who is great about anything. But I do understand sometimes you don’t want to talk to Mum about things. I have an old friend of 30 years who is trained and asked if she would speak to her, I said whatever you talk about she wont tell me, that is between you two. She agreed and we had a chat today and they are going to chat together next week.
One thing I love is scented candles, but never really thought about what happens when the candles are finished. I am sure I am not the only one who has a load of empty candle jars stored in a cupboard because they were too nice to throw away. I recently teamed up with Refill My Candle, who provide kits so we can refill and make our own scented candles, and bring our jars back to use. This morning myself and my Mum hit the kitchen to make our own, as it was the first chance I have had. It was great fun, and now waiting patiently for the candle to set so we can light it. Look out next week for my fully review.