Day 6 of ME Awareness week  today I am writing ME Awareness Week 2019 – A Letter To C.  I have not done this for a while and although  say it to her all the time.  It is nice to read it as well. ME Awareness Week 2019 – A Letter To C Dear C You have been ill since you were 11 years old.  At first we just thought you were getting used to Secondary school. It was new to you and a lot harder than Primary School. Nothing prepared us for when you had your first crash and…

Day 5 of ME Awareness week I am going to talk about ME Awareness Week 2019 – Extra Support our children desperately needs. Education Unlike healthy children, who go to school every day, children with ME or another illness can not have this luxury.  C like many other children struggled and tried to carry on at school.  Unfortunately, they can not cope due to the fatigue, the brain fog and pain plus many other symptoms.  Causing them to crash and become bedbound.  I was very lucky that our school worked with us trying different ways to help her manage school.…