Weekly Update – 13/02/2017

It is time for another update, these weeks are flying past, we are in the middle of February already.  It has been very busy here.

I will start off with C, things have been very bad for her it is like deja vu to last year. She can not walk, I have to be here to help her up and to the bathroom. She hasn’t even managed the stairs or to come downstairs for over a week. Will try herself and ends up collapsing on the floor. Her head is also causing her pain again with constant 24/7 migraine type pain.

She needs her medication changing or adjusting. But that has been a lot harder than you would imagine to try to sort out.  Luckily we have our appointment with a chronic illness consultant next week.  I have had to stop her going into school for her 1-2-1 tutoring. And have spoken to her tutor and tutors manager, and we are looking into home tutoring, for the time being. Just until she hopefully gets stronger again.

S, has been a normal 18 year old boy, he does work hard, but we are on  a battle at the moment, which I am winning.  I am still having to hide food or daring him not to touch anything, pulling him up on his attitude.  But we do also have a laugh.

I am having to stay in all day today, as we have a new sofa being delivered, we have needed one for a long time now.  I have some throws ready to put on it, and have nagged my husband into lecturing S when he comes in, that he is not allowed anywhere near it until he has changed out of his clothes.  My current one has suffered because of this and I am not having this one ruined.

I haven’t really got much to update on this week, as have been dealing with C.

My facebook memory photos this week

Hope you have all had a good week?


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Comments (18)

  • Stephanie Merry 2 years ago Reply

    Sounds like it’s been a tough week for C, but excited for you to get your new sofa delivered x

    admin 2 years ago Reply

    It has been a very tough week, and looking the same this week as well :(. My new sofa has not been delivered yet everytime we hear something we are looking to see if that is what it is x

  • Lisa prince 2 years ago Reply

    oh wow i bet your soo excited i love it when you get new things x

    admin 2 years ago Reply

    I am, but it is still not here yet and they have confirmed they are delivering today x

  • Deborah Nicholas 2 years ago Reply

    Sounds like C is having a tough time of it 🙁 Hope your sofa is here by now!

    admin 2 years ago Reply

    She is :(, and no sofa yet huge mix up but will be coming at some stage soon x

  • Sarah Bailey 2 years ago Reply

    I’m so sorry to hear that it has been such a rough week for C. I truly hope that the appointment with the new specialist will do some good and some answers will be had. Between now and then try and take care of yourself too x

    admin 2 years ago Reply

    Thank you, it is such a heartbreaking thing to watch, your child suffering, but we have been here before, and I am pretty sure she will start to ease the pain once we have seen her new consultant (fingers crossed). I will be ok, I also have my husband who is great and will step in x

  • Rhian Westbury 2 years ago Reply

    Sounds like such a tough week for C and it’s such a shame as she seemed to be doing so well with school etc before this x

    admin 2 years ago Reply

    It has been a tough week, and she is no better this week, I am positive once we get her meds sorted we will be back on track with school x

  • The London Mum 2 years ago Reply

    Poor C, I really hope they can help her whether that’s adjusting her meds or trying to figure out what’s wrong.

    admin 2 years ago Reply

    It is horrible, it is her illness and her meds need adjusting only a week to go

  • Gail 2 years ago Reply

    Hope you new Sofa arrived also hope you have an easier week with C. Hope she can get on new meds soon 🙂

    admin 2 years ago Reply

    No still not here, was a huge mix up, still waiting on it arriving. No improvement in C, but she was smiling yesterday only a week to go now before we see her consultant x

  • Crystal 2 years ago Reply

    It certainly sounds like it’s been a rough week for you. I hope things start to ease for you all. Super cute photos too@

    admin 2 years ago Reply

    It has been rough, just very hard when C is like this. They were cute, still are really x

  • ANOSA 2 years ago Reply

    Oh nice, share us your new sofa, i’m sure it is beautiful. I’,m excited to see it too!

    admin 2 years ago Reply

    Unfortunately, there was a mix up and was not delivered, but will let you know once it is finally here x

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