Weekly Update – 24/04/2017

Weekly Update – 24/04/2017

I am now back from my holiday celebrating my 50th birthday, so yes I am now officially old haha, am just doing a quick update this week. Last Sunday was my birthday and myself, husband and friends flew out to Cape Verde to celebrate my birthday, since we booked our holiday the resort had been split into two and we had heard good and bad comments about various things, we were all unsure what to expect.  Luckily we had no bad experiences at all. I was unsure about going and…

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Weekly Update – 11/04/2017

Weekly Update – 11/04/2017

Last week seems to have flown by in a blur, certainly was not the easiest of weeks we have had, so time for my weekly update. I will start with C, I mentioned last week about her breathing problems and taking her to out of hours, on Tuesday she was really bad and I was so worried and stressed.  I phoned my GP and got the dreaded receptionist, you know the one and refused to do anything, so I hung up and dialled 111, who were great and I did…

11,364 total views, 37 views today

Weekly Update – 27/03/2017

Weekly Update – 27/03/2017

Another week has flown by, and as usual there has not been a dull moment here, I may one day get a calm week to write about. As always I will start off with C, as you know on top of her CFS/ME she also has TMD which basically means her jaw doesn’t work properly and locks and causes her a lot of pain and discomfort.  I rang chasing our consultant early last week, and was told the consultant advised to tell her not to open her jaw too wide,…

18,171 total views, 1 views today

Weekly Update – 21/03/2017

Weekly Update – 21/03/2017

I am so sorry I am late with my weekly update, but am sure you will understand when I explain about the week we have had. I will start off with C, last week started off not too bad, she had her first home tuition session with her tutor on Tuesday, and managed an hour with a couple of breaks.  We honestly thought things were going to get back to a level where she could start to look to the future taking very tiny steps.  How wrong was I, on…

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Weekly Update – 13/03/2017

Weekly Update – 13/03/2017

It is time again for my weekly update, another week has been and gone.  Is it just me, or are these weeks going far too quickly. As always I will start with C, she has been suffering a bit with all the stress that has been going on lately (will explain a bit more below).  We had our home visit from her tutor and her boss last Tuesday, to see about home tutoring for the time being, until she is well enough to try at school again.  It went really…

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Weekly Update -25/02/2017

Weekly Update -25/02/2017

Another week has passed already, so that means one thing and time for my weekly update, and what a week it has been, it has been a right old rollercoaster ride. I will start off with C, she has been pretty much the same this week, and needed to be around, last Saturday just coming downstairs knocked her out.  We finally had her hospital appointment on Wednesday, we had a nightmare journey getting there and she did so well. The hospital was lovely and so were all the staff, we…

9,516 total views, 2 views today

Weekly Update – 13/02/2017

Weekly Update – 13/02/2017

It is time for another update, these weeks are flying past, we are in the middle of February already.  It has been very busy here. I will start off with C, things have been very bad for her it is like deja vu to last year, she can not walk, I have to be here to help her up and to the bathroom, she hasn’t even managed the stairs or to come downstairs for over a week, she will try herself and ends up collapsing on the floor, her head…

Weekly Update – 17/01/2017

Weekly Update – 17/01/2017

I know I am a few days late, with my weekly update, but I have not been around, I even turned on my out of office notifications on my emails and have not picked up my laptop all weekend. I will start off with updating you on C, she is still struggling a lot, she did not manage to go into school on Tuesday last week, but did manage her hour on Wednesday, before coming out and nearly collapsing in the reception area due to her legs, she then went…