Weekly Update – 21/03/2017

Weekly Update – 21/03/2017

I am so sorry I am late with my weekly update, but am sure you will understand when I explain about the week we have had. I will start off with C, last week started off not too bad, she had her first home tuition session with her tutor on Tuesday, and managed an hour with a couple of breaks.  We honestly thought things were going to get back to a level where she could start to look to the future taking very tiny steps.  How wrong was I, on…

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How we cope with ME/CFS

How we cope with ME/CFS

As regular readers know, my Daughter C is 13 years old and has been living with ME/CFS since new years eve 2015, in those few moments her life changed forever.  I thought as it has been a while since my last full update (apart from my weekly updates where I always mention how C is), it is time to fully update on how we are getting on and just how much all our lives are affected. I have written about what ME/CFS is, and if you are unsure you can…

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Living With A Chronic Illness A Year On

Living With A Chronic Illness A Year On

As regular readers will know, C got ill on 31st December 2015, and was finally diagnosed with ME/CFS last year, you will have seen my weekly updates filling you in, mainly about how she had been that week, so I thought I would do a full post, on how it has been, the struggles and how she really is coping with her illness and how it affects us all as a family. This time last year, C was ill and in pain, and we seemed to be living at the…

An Update – 17/12/16

An Update – 17/12/16

It seems ages since I last did an update, I really must make a resolution for 2017 to do my weekly updates, as I do get a lot of messages asking where they have gone. Things have been pretty stressful and busy here, I will start with an update on C, as you know she has ME and since returning back to school after half term, she has not been coping too well with it.  We have celebrated her becoming a teenager in November and all our plans ended up…