Living With A Chronic Illness A Year On

Living With A Chronic Illness A Year On

As regular readers will know, C got ill on 31st December 2015, and was finally diagnosed with ME/CFS last year, you will have seen my weekly updates filling you in, mainly about how she had been that week, so I thought I would do a full post, on how it has been, the struggles and how she really is coping with her illness and how it affects us all as a family. This time last year, C was ill and in pain, and we seemed to be living at the…

My Weekly Update – 23/01/2017

My Weekly Update – 23/01/2017

Wow another week has passed, and time for my weekly update (again), this past week has honestly gone so fast, it has been a very mixed week. I will start off with C, she has struggled a lot this week, her legs just do not seem to want to work properly and is causing her more pain than normal, her jaw seems to be worse and she is having more head pains too.  As you already know, she now goes to school for one hour a day on a Tuesday,…

Goodbye September – Hello October

Goodbye September – Hello October

I can not believe another month is over, where has September gone, it has flown by for us, and now we are looking forward to a brand new month. September has had its ups and downs, and very busy we saw the start of the new school year, and C starting back with her 1 hour lessons 3 days a week.  She seems to be coping ok, we tried increasing to an hour and a half, but she struggled, so we put it back down again.  She is loving her…

My Week – 18/09/2016

My Week – 18/09/2016

Another week has flown by, and it is time for my weekly post about the goings on in the StressedMum household. My Daughter C, started back at school this week, she does 1 hour a day on a Tuesday, Wednesday and Thursday, in school with a tutor.  She has loved going back into school and starting to get a bit of routine back in to her life.  She was struggling by Thursday, but the smile on her face when she came out on Thursday made my week.  I asked her…

My Week – 12/09/2016

My Week – 12/09/2016

I have not done a my week post for a while now, due for various reasons, but am going to restart doing them, as I know a lot of people liked them and I have had people message me regarding them, also sorry this is a little late. Last week, was full of mainly positives for a change.  Will start with my Daughter C, I had a little panic on Monday, as we had not heard anything regarding her tutoring sessions, and school starting back on Wednesday, so the emails…

Goodbye August – Hello September

Goodbye August – Hello September

So another month has passed and a new one just beginning.  We have had such lovely weather in August. I have found August very hard, as friends and family have been enjoying family days out and holidays, or hearing about the kids going out to play.  I was expecting this as my friend told me the first summer holidays are always the worst. I have felt jealous and as this should have been us, out enjoying the summer holidays. August for us has seen C have her friend here once, she…

Goodbye July – Hello August

Goodbye July – Hello August

Wow another month has gone by and I have just realised I have not updated for a while. We are now in the summer holidays and the school year has ended, unfortunately C has not managed school for a long time now.  I had a meeting a couple of weeks before school finished, and a plan has been put in place for September.  So fingers crossed we can slowly try to get her back into school. After talking to a lot of parents with children with ME/CFS, I had constant…

An Update

An Update

I need to apologise as have not been keeping up with my weekly posts, so thought I would do an update for you all, as I know a lot of you do keep up with the weekly updates. It has been a few weeks since I last did a weekly update, I have been having quite a stressful time, definitely living up to the name of StressedMum. I have been having a few emotional times and fighting with various professionals, but finally things seem to be coming together and hopefully,…

My Week – 12/06/2016

My Week – 12/06/2016

I can not believe another week has flown by us, and it is time for my weekly update. It has been quite a rollercoaster and emotional week this week. My Daughter managed to go into school on Tuesday afternoon, but could not stay for her full 2 hours and I got a call to pick her up early. Wednesday we had our CAHMS appointment, and nothing prepared me for just how the meeting would go.  We went along and had to wait a bit as they had an emergency, so…

My Week 07-05/16

My Week 07-05/16

Time again to update you on my week, and what has been happening in the StressedMum household, of course it wouldn’t be my week if there was no drama. On the whole it has been a pretty good week, Bank Holiday Monday we had a relaxing day just pottering around at home, and Tuesday my Daughter was having a very bad day, just getting up wiped her out and she could barely walk, so we had another quiet day at home. Wednesday morning, I had to take her for a…