Wow another month has gone by and I have just realised I have not updated for a while. We are now in the summer holidays and the school year has ended, unfortunately C has not… View Post

Dear Mums and Dads of Children with a chronic illness I want you to know you are not alone, although you may feel very alone at times. I know what it is like to have… View Post

I can not believe another week has passed, it seems to have flown by this week. My Daughter has had a really bad week this week, and did not make school, we had her consultants… View Post

Dear Daughter Today is ME Awareness Day and I am writing this letter to you, to let you know how amazing both Dad and I think you are. You have had a very rough year… View Post

I wrote a post yesterday about ME/CFS Awareness Week, and shared a video taken from the ME Associations website, which really shows what it is like living with ME/CFS.  Today I am going to write… View Post

Today is the start of ME/CFS Awareness Week, and everyone is going blue, so if you see a lot of blue around you now know why. As you will know my Daughter has been diagnosed… View Post

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This is the first post, in what will become a regular feature, I will start by recapping on our story of how we got here. On New Years Eve, we were with friends about to… View Post

I thought I would do a little update today, for those of you that have been following my weekly updates and my Daughters illness. As you will know, from my weekly update last Saturday, we… View Post