Weekly Update – 18/02/2017

Weekly Update – 18/02/2017

Another week has gone by, and it has been half term here (not that it affects us much at the moment), so it is time for my weekly update.  It has been quite a week, so will apologise now if it is long. I will start off with C, she had a very bad week last week, and this week her legs and pain have been no better, and I have had times when she has tried to get up without me, and ended up on the floor and heard…

Weekly Update – 13/02/2017

Weekly Update – 13/02/2017

It is time for another update, these weeks are flying past, we are in the middle of February already.  It has been very busy here. I will start off with C, things have been very bad for her it is like deja vu to last year, she can not walk, I have to be here to help her up and to the bathroom, she hasn’t even managed the stairs or to come downstairs for over a week, she will try herself and ends up collapsing on the floor, her head…

January Catchup

January Catchup

February is here, we survived January, can you believe it is February already, I swear I blinked and missed it all. January has been an okish month for us, my parents celebrated their 51st wedding anniversary, what an achievement. C has had a tough month, with being in a crash for most of it, and hardly being able to go to school, but it seems that they are all suffering at the moment, so must be the time of year that is affecting them.  We have our appointment with her…

Living With A Chronic Illness A Year On

Living With A Chronic Illness A Year On

As regular readers will know, C got ill on 31st December 2015, and was finally diagnosed with ME/CFS last year, you will have seen my weekly updates filling you in, mainly about how she had been that week, so I thought I would do a full post, on how it has been, the struggles and how she really is coping with her illness and how it affects us all as a family. This time last year, C was ill and in pain, and we seemed to be living at the…

My Weekly Update – 23/01/2017

My Weekly Update – 23/01/2017

Wow another week has passed, and time for my weekly update (again), this past week has honestly gone so fast, it has been a very mixed week. I will start off with C, she has struggled a lot this week, her legs just do not seem to want to work properly and is causing her more pain than normal, her jaw seems to be worse and she is having more head pains too.  As you already know, she now goes to school for one hour a day on a Tuesday,…

Weekly Update – 17/01/2017

Weekly Update – 17/01/2017

I know I am a few days late, with my weekly update, but I have not been around, I even turned on my out of office notifications on my emails and have not picked up my laptop all weekend. I will start off with updating you on C, she is still struggling a lot, she did not manage to go into school on Tuesday last week, but did manage her hour on Wednesday, before coming out and nearly collapsing in the reception area due to her legs, she then went…

A Mothers Pain

A Mothers Pain

As a parent all you want for your child is to be happy and healthy and enjoy their life, from that moment they are placed in your arms you have dreams for them, you want to protect them and take away any pain they feel. But what happens when you can’t take that pain away, when you have to sit and just watch your child suffer and know that you can not do anything. I have learnt a lot this year, as regular readers will know C who has just…

Noozie Bottle Review

Noozie Bottle Review

I have no idea what happens, but as soon as the clocks change the weather gets a lot colder, and we start to resort to the comforts of keeping warm. The cold weather can make anyone feel  miserable with just feeling cold, but if you suffer with chronic pain, keeping warm really does help. This is where Noozie can help. So what is a Noozie? Noozie is an electronic hot water bottle, we are all very familiar with hot water bottles and boiling a kettle and pouring the hot water into the…

Blogtober Day 30 – A Letter To Someone

Blogtober Day 30 – A Letter To Someone

It is Day 30 of Blogtober and todays topic is a letter to someone.  I have sat here and started writing many letters and stopped, and rewritten.  I just can not find the right words or the right topic. I am going through a very emotional time at the moment and struggling with a lot of things. My daughter turns 13 next week, and a letter will be written then, but right now I am very angry and very bitter and not able to write to anyone. Here is a…

Smile For ME

Smile For ME

As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year.  It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis. I have not really updated much lately, she is now back in school for 3 hourly lessons a week, we have tried to increase but she just can not cope with the increase at the moment.  Last Wednesday, she crashed and was in bed suffering all day.  Thursday she was determined to go in for…