A Mothers Pain

A Mothers Pain

As a parent all you want for your child is to be happy and healthy and enjoy their life, from that moment they are placed in your arms you have dreams for them, you want to protect them and take away any pain they feel. But what happens when you can’t take that pain away, when you have to sit and just watch your child suffer and know that you can not do anything. I have learnt a lot this year, as regular readers will know C who has just…

Noozie Bottle Review

Noozie Bottle Review

I have no idea what happens, but as soon as the clocks change the weather gets a lot colder, and we start to resort to the comforts of keeping warm. The cold weather can make anyone feel  miserable with just feeling cold, but if you suffer with chronic pain, keeping warm really does help. This is where Noozie can help. So what is a Noozie? Noozie is an electronic hot water bottle, we are all very familiar with hot water bottles and boiling a kettle and pouring the hot water into the…

Blogtober Day 30 – A Letter To Someone

Blogtober Day 30 – A Letter To Someone

It is Day 30 of Blogtober and todays topic is a letter to someone.  I have sat here and started writing many letters and stopped, and rewritten.  I just can not find the right words or the right topic. I am going through a very emotional time at the moment and struggling with a lot of things. My daughter turns 13 next week, and a letter will be written then, but right now I am very angry and very bitter and not able to write to anyone. Here is a…

Smile For ME

Smile For ME

As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year.  It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis. I have not really updated much lately, she is now back in school for 3 hourly lessons a week, we have tried to increase but she just can not cope with the increase at the moment.  Last Wednesday, she crashed and was in bed suffering all day.  Thursday she was determined to go in for…

5 Things I Have Learnt About Caring

5 Things I Have Learnt About Caring

As regular readers will know, our lives have changed this year due to my Daughter having a chronic illness. Living with someone who has disabilities can be very hard and normal everyday things we all take for granted, are suddenly not so easy.  I have listed 5 things that have changed since she has become ill. energy – Even normal everyday things like getting dressed can wipe her out so we have to take time and prepare her, so that she is not rushing and can do things in her own…

Goodbye July – Hello August

Goodbye July – Hello August

Wow another month has gone by and I have just realised I have not updated for a while. We are now in the summer holidays and the school year has ended, unfortunately C has not managed school for a long time now.  I had a meeting a couple of weeks before school finished, and a plan has been put in place for September.  So fingers crossed we can slowly try to get her back into school. After talking to a lot of parents with children with ME/CFS, I had constant…

A Mums Letter From The Heart

A Mums Letter From The Heart

Dear Mums and Dads of Children with a chronic illness I want you to know you are not alone, although you may feel very alone at times. I know what it is like to have your once healthy and happy child, suddenly over night become struck by this wicked illness. They go from leading a ‘normal’ life of going to school, seeing friends and being children. I have sat and held my child tight while she has cried her heart out, with the ‘why me’, when she is in pain,…

My Week – 15/05/16

My Week – 15/05/16

I can not believe another week has passed, it seems to have flown by this week. My Daughter has had a really bad week this week, and did not make school, we had her consultants appointment on Tuesday, and more blood tests.  We managed to get her into the hospital for her appointment and then used a wheelchair, have you ever tried to steer one of those, they do not go in a straight line, so that gave us a few laughs.  The appointment went well, and he is supporting…

A Letter to my beautiful Daughter

A Letter to my beautiful Daughter

Dear Daughter Today is ME Awareness Day and I am writing this letter to you, to let you know how amazing both Dad and I think you are. You have had a very rough year with being ill, you have had days and weeks, of not being able to get up out of bed, you have had times you have been so shattered you have not wanted to move, days where you could not walk (or your bambi days as well call them). You have missed a lot of school…

Living with a child who has ME/CFS

Living with a child who has ME/CFS

I wrote a post yesterday about ME/CFS Awareness Week, and shared a video taken from the ME Associations website, which really shows what it is like living with ME/CFS.  Today I am going to write a post about what it is like living with a child who is suffering with this chronic illness. My Daughter is 12, up until New Years Eve, she was just like any other child of her age, she went to school, met up with friends to go shopping on a Saturday or met up in…