Weekly Update – 27/03/2017

Weekly Update – 27/03/2017

Another week has flown by, and as usual there has not been a dull moment here, I may one day get a calm week to write about. As always I will start off with C, as you know on top of her CFS/ME she also has TMD which basically means her jaw doesn’t work properly and locks and causes her a lot of pain and discomfort.  I rang chasing our consultant early last week, and was told the consultant advised to tell her not to open her jaw too wide,…

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Weekly Update – 21/03/2017

Weekly Update – 21/03/2017

I am so sorry I am late with my weekly update, but am sure you will understand when I explain about the week we have had. I will start off with C, last week started off not too bad, she had her first home tuition session with her tutor on Tuesday, and managed an hour with a couple of breaks.  We honestly thought things were going to get back to a level where she could start to look to the future taking very tiny steps.  How wrong was I, on…

10,857 total views, 908 views today

How we cope with ME/CFS

How we cope with ME/CFS

As regular readers know, my Daughter C is 13 years old and has been living with ME/CFS since new years eve 2015, in those few moments her life changed forever.  I thought as it has been a while since my last full update (apart from my weekly updates where I always mention how C is), it is time to fully update on how we are getting on and just how much all our lives are affected. I have written about what ME/CFS is, and if you are unsure you can…

6,017 total views, 433 views today

Weekly Update – 13/03/2017

Weekly Update – 13/03/2017

It is time again for my weekly update, another week has been and gone.  Is it just me, or are these weeks going far too quickly. As always I will start with C, she has been suffering a bit with all the stress that has been going on lately (will explain a bit more below).  We had our home visit from her tutor and her boss last Tuesday, to see about home tutoring for the time being, until she is well enough to try at school again.  It went really…

15,636 total views, 808 views today

February Roundup

February Roundup

Well we are now into March, how quickly did February go, as I was away for the weekend I am doing my monthly update and weekly update in one go. As always I will start with C, she has had a rough month with her illness, she has been in a lot of pain and apart from our trip to the hospital the other week, she has been bed bound, and very ill.  Her hospital appointment went well although they have diagnosed her as having severe CFS rather than just…

17,373 total views, 182 views today

Weekly Update – 18/02/2017

Weekly Update – 18/02/2017

Another week has gone by, and it has been half term here (not that it affects us much at the moment), so it is time for my weekly update.  It has been quite a week, so will apologise now if it is long. I will start off with C, she had a very bad week last week, and this week her legs and pain have been no better, and I have had times when she has tried to get up without me, and ended up on the floor and heard…

Weekly Update – 13/02/2017

Weekly Update – 13/02/2017

It is time for another update, these weeks are flying past, we are in the middle of February already.  It has been very busy here. I will start off with C, things have been very bad for her it is like deja vu to last year, she can not walk, I have to be here to help her up and to the bathroom, she hasn’t even managed the stairs or to come downstairs for over a week, she will try herself and ends up collapsing on the floor, her head…

January Catchup

January Catchup

February is here, we survived January, can you believe it is February already, I swear I blinked and missed it all. January has been an okish month for us, my parents celebrated their 51st wedding anniversary, what an achievement. C has had a tough month, with being in a crash for most of it, and hardly being able to go to school, but it seems that they are all suffering at the moment, so must be the time of year that is affecting them.  We have our appointment with her…

Living With A Chronic Illness A Year On

Living With A Chronic Illness A Year On

As regular readers will know, C got ill on 31st December 2015, and was finally diagnosed with ME/CFS last year, you will have seen my weekly updates filling you in, mainly about how she had been that week, so I thought I would do a full post, on how it has been, the struggles and how she really is coping with her illness and how it affects us all as a family. This time last year, C was ill and in pain, and we seemed to be living at the…

My Weekly Update – 23/01/2017

My Weekly Update – 23/01/2017

Wow another week has passed, and time for my weekly update (again), this past week has honestly gone so fast, it has been a very mixed week. I will start off with C, she has struggled a lot this week, her legs just do not seem to want to work properly and is causing her more pain than normal, her jaw seems to be worse and she is having more head pains too.  As you already know, she now goes to school for one hour a day on a Tuesday,…