Weekly Update – 21/03/2017

Weekly Update – 21/03/2017

I am so sorry I am late with my weekly update, but am sure you will understand when I explain about the week we have had. I will start off with C, last week started off not too bad, she had her first home tuition session with her tutor on Tuesday, and managed an hour with a couple of breaks.  We honestly thought things were going to get back to a level where she could start to look to the future taking very tiny steps.  How wrong was I, on…

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How we cope with ME/CFS

How we cope with ME/CFS

As regular readers know, my Daughter C is 13 years old and has been living with ME/CFS since new years eve 2015, in those few moments her life changed forever.  I thought as it has been a while since my last full update (apart from my weekly updates where I always mention how C is), it is time to fully update on how we are getting on and just how much all our lives are affected. I have written about what ME/CFS is, and if you are unsure you can…

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February Roundup

February Roundup

Well we are now into March, how quickly did February go, as I was away for the weekend I am doing my monthly update and weekly update in one go. As always I will start with C, she has had a rough month with her illness, she has been in a lot of pain and apart from our trip to the hospital the other week, she has been bed bound, and very ill.  Her hospital appointment went well although they have diagnosed her as having severe CFS rather than just…

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Weekly Update -25/02/2017

Weekly Update -25/02/2017

Another week has passed already, so that means one thing and time for my weekly update, and what a week it has been, it has been a right old rollercoaster ride. I will start off with C, she has been pretty much the same this week, and needed to be around, last Saturday just coming downstairs knocked her out.  We finally had her hospital appointment on Wednesday, we had a nightmare journey getting there and she did so well. The hospital was lovely and so were all the staff, we…

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Weekly Update – 13/02/2017

Weekly Update – 13/02/2017

It is time for another update, these weeks are flying past, we are in the middle of February already.  It has been very busy here. I will start off with C, things have been very bad for her it is like deja vu to last year, she can not walk, I have to be here to help her up and to the bathroom, she hasn’t even managed the stairs or to come downstairs for over a week, she will try herself and ends up collapsing on the floor, her head…

January Catchup

January Catchup

February is here, we survived January, can you believe it is February already, I swear I blinked and missed it all. January has been an okish month for us, my parents celebrated their 51st wedding anniversary, what an achievement. C has had a tough month, with being in a crash for most of it, and hardly being able to go to school, but it seems that they are all suffering at the moment, so must be the time of year that is affecting them.  We have our appointment with her…

Living With A Chronic Illness A Year On

Living With A Chronic Illness A Year On

As regular readers will know, C got ill on 31st December 2015, and was finally diagnosed with ME/CFS last year, you will have seen my weekly updates filling you in, mainly about how she had been that week, so I thought I would do a full post, on how it has been, the struggles and how she really is coping with her illness and how it affects us all as a family. This time last year, C was ill and in pain, and we seemed to be living at the…

My Weekly Update – 23/01/2017

My Weekly Update – 23/01/2017

Wow another week has passed, and time for my weekly update (again), this past week has honestly gone so fast, it has been a very mixed week. I will start off with C, she has struggled a lot this week, her legs just do not seem to want to work properly and is causing her more pain than normal, her jaw seems to be worse and she is having more head pains too.  As you already know, she now goes to school for one hour a day on a Tuesday,…

Weekly Update – 17/01/2017

Weekly Update – 17/01/2017

I know I am a few days late, with my weekly update, but I have not been around, I even turned on my out of office notifications on my emails and have not picked up my laptop all weekend. I will start off with updating you on C, she is still struggling a lot, she did not manage to go into school on Tuesday last week, but did manage her hour on Wednesday, before coming out and nearly collapsing in the reception area due to her legs, she then went…

Weekly Update – 07/01/2017

Weekly Update – 07/01/2017

We are now a week into the new year, and time to restart my weekly updates again, I have had so many people ask me to start posting them again, and what better time to restart than the start of a new year. This week has been very quiet, but very busy, I will start of with updating you on C, she restarted school on Thursday, so a nice gentle return to normality for her.  She has struggled all over christmas and up until Wednesday I really did not think…