Living with Chronic Fatigue Syndrome/ME

My Daughter suffers with CFS this page is to share our story both as sufferer and carer, and to maybe help others feel that they are not alone

As a parent all you want for your child is to be happy and healthy and enjoy their life, from that moment they are placed in your arms you have dreams for them, you want… View Post

As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year.  It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis.… View Post

As regular readers will know, our lives have changed this year due to my Daughter having a chronic illness. Living with someone who has disabilities can be very hard and normal everyday things we all… View Post

Dear Mums and Dads of Children with a chronic illness I want you to know you are not alone, although you may feel very alone at times. I know what it is like to have… View Post

Summer is a great time for a get-together, whether it’s a big family meal, a kids’ party or a few friends having drinks al fresco. It should be a time for everyone to enjoy each… View Post

Today my news feed on all my social media platforms has been over run with #MillionsMissing. It is all about showing support to those suffering with ME/CFS and showing what sufferers are missing.  The aim… View Post

Today, I have done something that I have wanted to do for so long, I took my Daughter out on a little trip out. Yes that is right you read it correctly, we went out… View Post

Dear Daughter Today is ME Awareness Day and I am writing this letter to you, to let you know how amazing both Dad and I think you are. You have had a very rough year… View Post

I wrote a post yesterday about ME/CFS Awareness Week, and shared a video taken from the ME Associations website, which really shows what it is like living with ME/CFS.  Today I am going to write… View Post

Today is the start of ME/CFS Awareness Week, and everyone is going blue, so if you see a lot of blue around you now know why. As you will know my Daughter has been diagnosed… View Post

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