Weekly Update – 24/04/2017

Weekly Update – 24/04/2017

I am now back from my holiday celebrating my 50th birthday, so yes I am now officially old haha, am just doing a quick update this week. Last Sunday was my birthday and myself, husband and friends flew out to Cape Verde to celebrate my birthday, since we booked our holiday the resort had been split into two and we had heard good and bad comments about various things, we were all unsure what to expect.  Luckily we had no bad experiences at all. I was unsure about going and…

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Weekly Update – 11/04/2017

Weekly Update – 11/04/2017

Last week seems to have flown by in a blur, certainly was not the easiest of weeks we have had, so time for my weekly update. I will start with C, I mentioned last week about her breathing problems and taking her to out of hours, on Tuesday she was really bad and I was so worried and stressed.  I phoned my GP and got the dreaded receptionist, you know the one and refused to do anything, so I hung up and dialled 111, who were great and I did…

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March Round Up

March Round Up

March has been and gone, how quickly did that happen, so only one thing left to do is my March Round Up, and will also include my weekly update post as well. March was a good and bad month for us, I had a great weekend away to Gunwarf Quays with my husband, if you missed it you can read about it here,  it was a very much needed break for us, to recharge our batteries and leave all the stress behind us. Also, we were invited to do a…

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Weekly Update – 27/03/2017

Weekly Update – 27/03/2017

Another week has flown by, and as usual there has not been a dull moment here, I may one day get a calm week to write about. As always I will start off with C, as you know on top of her CFS/ME she also has TMD which basically means her jaw doesn’t work properly and locks and causes her a lot of pain and discomfort.  I rang chasing our consultant early last week, and was told the consultant advised to tell her not to open her jaw too wide,…

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Weekly Update – 21/03/2017

Weekly Update – 21/03/2017

I am so sorry I am late with my weekly update, but am sure you will understand when I explain about the week we have had. I will start off with C, last week started off not too bad, she had her first home tuition session with her tutor on Tuesday, and managed an hour with a couple of breaks.  We honestly thought things were going to get back to a level where she could start to look to the future taking very tiny steps.  How wrong was I, on…

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Weekly Update – 13/03/2017

Weekly Update – 13/03/2017

It is time again for my weekly update, another week has been and gone.  Is it just me, or are these weeks going far too quickly. As always I will start with C, she has been suffering a bit with all the stress that has been going on lately (will explain a bit more below).  We had our home visit from her tutor and her boss last Tuesday, to see about home tutoring for the time being, until she is well enough to try at school again.  It went really…

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February Roundup

February Roundup

Well we are now into March, how quickly did February go, as I was away for the weekend I am doing my monthly update and weekly update in one go. As always I will start with C, she has had a rough month with her illness, she has been in a lot of pain and apart from our trip to the hospital the other week, she has been bed bound, and very ill.  Her hospital appointment went well although they have diagnosed her as having severe CFS rather than just…

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My Low Carb Diet

My Low Carb Diet

I mentioned in one of my recent weekly update posts, that I have started a new low carb diet, now usually anything that has the word diet in, and I start off positive and by the end of the week have cheated. Luckily my husband is on board with this, and we are doing this together.  For me one of my biggest downfalls is fresh bread, but coming from a baking family that is hardly a surprise to anyone.  I also suffer with IBS and this has been something I…

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Weekly Update -25/02/2017

Weekly Update -25/02/2017

Another week has passed already, so that means one thing and time for my weekly update, and what a week it has been, it has been a right old rollercoaster ride. I will start off with C, she has been pretty much the same this week, and needed to be around, last Saturday just coming downstairs knocked her out.  We finally had her hospital appointment on Wednesday, we had a nightmare journey getting there and she did so well. The hospital was lovely and so were all the staff, we…

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Weekly Update – 18/02/2017

Weekly Update – 18/02/2017

Another week has gone by, and it has been half term here (not that it affects us much at the moment), so it is time for my weekly update.  It has been quite a week, so will apologise now if it is long. I will start off with C, she had a very bad week last week, and this week her legs and pain have been no better, and I have had times when she has tried to get up without me, and ended up on the floor and heard…