May Round Up

Wow it is June already, can you believe we are half way through the year already, May seems to have flown by, which means it is time for my May roundup.

I will start with C, if I am being honest, she is just getting worse at the moment, this I think is mainly to do with her jaw problems, she has been struggling since October last year, and it is getting worse all the time.  She is at a stage now with it where both sides of her jaw is affected and she can not open her mouth, so eating is a complete nightmare, and I am getting so stressed out with trying to find her something she can eat (or at least try to eat), last night it took me hours to get her to finally take her medication.  She should have started physio for her jaw two weeks ago, but they cancelled this without letting us know, so the trauma of getting her out the house and to there, caused her to go into a complete crash.  The not eating and being in so much pain, is having a knock on effect with her ME, and I am at a complete loss, and it is breaking my heart watching her suffer, plus we have had a couple of nights away and although it has done me good to get out of the situation to relax, it is still very hard on us all.

May was also ME Awareness month, and I wrote various posts on the reality of living with ME, how ME affects the sufferer and a very personal post on what it is like to be a parent of a child suffering with ME, you can find the posts here.

In May, I was lucky enough to have two trips away, the first to the Crazy Bear (post still to come) and then this week an amazing trip to Amsterdam where no flying was involved (also post to come).  I needed the break, C was fine and being well cared for by my parents.

June is going to be very stressful, as my Dad is having both his knees replaced (hopefully), just need to wait and see if with his medical history, they are going to do both together or one at a time.  So I am also needed to be around to help out with him.

I do also have some amazing news to share, I know some of you are on my personal Facebook and would have already seen this.

Finally, after what seems like months of having to keep quiet I can reveal that this happened on Wednesday

I am very proud to announce that I am going to be a Nanny on 7th December, it has been one of the hardest things to keep quiet about.

I hope you have had a good May, do you have any plans for June?




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  1. 03/06/2017 / 10:30 am

    Oh my goodness poor C, that sounds awful. Hope your Dads op goes well, my great uncle is having his hip replaced soon. Congrats on the grandchild to be!

    • admin
      03/06/2017 / 10:35 am

      Thank you, I am going out of my mind with worry, but we just have to sit and wait for professionals to get in touch or help. I have had to keep this quiet for so long,and then had to wait for them to make the announcement, it has been very hard but we are all very excited x

  2. 03/06/2017 / 7:25 pm

    I hope you find a way of enabling her to eat soon. I know how hard it can be when you can’t get enough food into your child. Sending much love to you both x

    • admin
      04/06/2017 / 9:16 am

      Thank you it is one of the most frustrating things x

  3. hannah
    04/06/2017 / 8:16 am

    The year is going by fast, cant believe it is June already. Summer is here

    • admin
      04/06/2017 / 9:16 am

      I know scary how quickly it is going

  4. 04/06/2017 / 4:13 pm

    Oh congratulations! So happy to hear that you’re going to be a grandmother! xxx

    • admin
      04/06/2017 / 4:57 pm

      Thank you, so am I 🙂 we have known for ages but not been able to say anything and it has been very hard, it is lovely to have some good news and something to look forward to x

  5. 04/06/2017 / 7:59 pm

    Congratulations on learning that you’re going to be a Nan – that’s so exciting! x

    • admin
      04/06/2017 / 10:05 pm

      Thank you, it has killed me to have to keep it quiet and not tell anyone,and I am looking forward to buying baby clothes

  6. Ali Rost
    04/06/2017 / 11:46 pm

    I’m so glad to read that you took some time away for yourself. I know all too well how difficult it can be to be a caregiver. It takes so much out of you. Also, God bless your parents for being willing to step in and give you the gift of not having to worry about things while you were away x

    • admin
      05/06/2017 / 9:03 am

      It was lovely to get away, but still made me feel so guilty, and my parents are amazing x

  7. 05/06/2017 / 12:14 pm

    Poor C, I hope you get her jaw sorted, poor thing. Congratulations on becoming a nanny!

    • admin
      05/06/2017 / 1:10 pm

      Thank you she starts physio this week hopefully, and I can not wait for December x

  8. Rebecca
    05/06/2017 / 4:59 pm

    So sorry that C seems to be getting worse at the moment and that June is likely to be a stressful month but glad you managed to get a break x

    • admin
      05/06/2017 / 7:04 pm

      Thank you, she is going through a really rough patch but hopefully once her jaw is on the mend and she can eat properly again and not be in pain she will start to improve, and the break was lovely and needed x

  9. Helen
    05/06/2017 / 5:17 pm

    Oh poor C! That must be awful. I hope the physio starts soon so she can start eating again and building her strength up. Congratulation of your news, being a grandma is such an exciting time for you all.

    • admin
      05/06/2017 / 7:03 pm

      It is horrible but we are struggling through, she starts physio this week hopefully. It is exciting and can not wait x

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