Weekly Update – 13/02/2017

Weekly Update

It is time for another update, these weeks are flying past, we are in the middle of February already.  It has been very busy here.

I will start off with C, things have been very bad for her it is like deja vu to last year, she can not walk, I have to be here to help her up and to the bathroom, she hasn’t even managed the stairs or to come downstairs for over a week, she will try herself and ends up collapsing on the floor, her head is also causing her pain again with constant 24/7 migraine type pain.  She needs her medication changing or adjusting but that has been a lot harder than you would imagine to try to sort out.  Luckily we have our appointment with a chronic illness consultant next week.  I have had to stop her going into school for her 1-2-1 tutoring, and have spoken to her tutor and tutors manager, and we are looking into home tutoring, for the time being, until she hopefully gets stronger again.

S, has been a normal 18 year old boy, he does work hard, but we are on  a battle at the moment, which I am winning.  I am still having to hide food or daring him not to touch anything, pulling him up on his attitude.  But we do also have a laugh.

I am having to stay in all day today, as we have a new sofa being delivered, we have needed one for a long time now.  I have some throws ready to put on it, and have nagged my husband into lecturing S when he comes in, that he is not allowed anywhere near it until he has changed out of his clothes.  My current one has suffered because of this and I am not having this one ruined.

I haven’t really got much to update on this week, as have been dealing with C.

My facebook memory photos this week

Hope you have all had a good week?

 

Thank you for visiting x

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18 thoughts on “Weekly Update – 13/02/2017

  1. Sounds like it’s been a tough week for C, but excited for you to get your new sofa delivered x

    1. admin

      It has been a very tough week, and looking the same this week as well :(. My new sofa has not been delivered yet everytime we hear something we are looking to see if that is what it is x

  2. oh wow i bet your soo excited i love it when you get new things x

    1. admin

      I am, but it is still not here yet and they have confirmed they are delivering today x

  3. Sounds like C is having a tough time of it 🙁 Hope your sofa is here by now!

    1. admin

      She is :(, and no sofa yet huge mix up but will be coming at some stage soon x

  4. I’m so sorry to hear that it has been such a rough week for C. I truly hope that the appointment with the new specialist will do some good and some answers will be had. Between now and then try and take care of yourself too x

    1. admin

      Thank you, it is such a heartbreaking thing to watch, your child suffering, but we have been here before, and I am pretty sure she will start to ease the pain once we have seen her new consultant (fingers crossed). I will be ok, I also have my husband who is great and will step in x

  5. Sounds like such a tough week for C and it’s such a shame as she seemed to be doing so well with school etc before this x

    1. admin

      It has been a tough week, and she is no better this week, I am positive once we get her meds sorted we will be back on track with school x

  6. Poor C, I really hope they can help her whether that’s adjusting her meds or trying to figure out what’s wrong.

    1. admin

      It is horrible, it is her illness and her meds need adjusting only a week to go

  7. Hope you new Sofa arrived also hope you have an easier week with C. Hope she can get on new meds soon 🙂

    1. admin

      No still not here, was a huge mix up, still waiting on it arriving. No improvement in C, but she was smiling yesterday only a week to go now before we see her consultant x

  8. It certainly sounds like it’s been a rough week for you. I hope things start to ease for you all. Super cute photos too@

    1. admin

      It has been rough, just very hard when C is like this. They were cute, still are really x

  9. Oh nice, share us your new sofa, i’m sure it is beautiful. I’,m excited to see it too!

    1. admin

      Unfortunately, there was a mix up and was not delivered, but will let you know once it is finally here x

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