Smile For ME

As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year.  It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis.

I have not really updated much lately, she is now back in school for 3 hourly lessons a week, we have tried to increase but she just can not cope with the increase at the moment.  Last Wednesday, she crashed and was in bed suffering all day.  Thursday she was determined to go in for her tuition, and although she struggled she got through it.  This would not be possible without the huge support of her tutor who is great with her, and C gets on well with her.

We have had another symptom emerge, with clicking and painful mouth joints, it hurts to eat and talk.  On looking this up and speaking to other parents, this is a condition of ME, but also could be something else which presents itself like ME.  So am waiting to get her in to see our GP who understands the condition.

So as you can probably gather she has been having a pretty rough time of it lately.  So when the doorbell rang on Saturday morning and our lovely postman handed me a parcel for C, I could see through the wrapper that it was a parcel from Smile For ME.  This is a charity where you can nominate a child who has this chronic illness, tell them a bit about what they like and they send out a present tailor made for what they like.

Her parcel contained 5 gifts all wrapped in the Smile For ME paper with a little gift tag (excuse the bad photos but her curtains were closed due to the light affecting her and she wanted to draw).

Smile For ME, is a charity that are able to send these gifts to put a smile on a childs face, by working hard through fundraising and donations.

Please if you have a spare few minutes visit there site and see all the good work they do.

I can not thank them enough for the smile they put on C’s face and it was like they knew she was going through a rough patch and struggling.

Thank you for visiting x

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38 thoughts on “Smile For ME

  1. This is such a lovely concept and a wonderful gift. Sending love to you and C!

    1. admin

      Thank you, it is such a great charity

  2. Aw bless her, my joints click too especially my neck, arms and hips, she might have hypermobile joints which causes friction? Its great that Smile sent a nice parcel through for her x

    1. admin

      I think she does have hypermobile joints you should see what she can do with her legs (makes me feel sick), I was talking to other parents today and it could be an indication to something else which we hope its not. It was a great parcel x

  3. Lovely gift. I don’t know much about this illness, but I hope it will ease up with the time. Hugs and prayers to you!

    1. admin

      It was the perfect gift for my very arty daughter thank you x

  4. This is one thing I love about blogging, the ability to raise awareness, share experiences and educate. I have learnt so much about illnesses from blogs than I ever have elsewhere and it has really opened my eyes x

    1. admin

      Blogging is great to raise awareness, and the good thing about blogs is that they tell it from a personal side rather than a medical side x

  5. I am so sorry to hear your daughter is struggling, but what a beautiful idea this is, I am going to check it out to see if I can help in some way xx

    1. admin

      She is having a hard time, but trying so hard. It is such a lovely idea and really does help the person nominated x

  6. What a lovely surprise. There are a lot of conditions related to hypermobility as I am just finding out myself. Sending positive thoughts your way.

    1. admin

      It was a lovely surprise, I know I am finding this out as well x

  7. Oh wow this is so lovely. Such a great gift and I love the concept of putting a smile on someone elses face. So thoughtful and kind xxx

    1. admin

      It was a great surprise for her and came at just the right time, it is such a great idea x

  8. What a fantastic gift and a great idea to raise a smile for a loved one. My mummy’s friend has ME and she’s such a wonderful, strong women.

    1. admin

      It was a great gift and ME does make you stronger x

  9. Awww this sounds like a great idea for a gift. Good to know your daughter loves it.

    1. admin

      Thank you, it certainly cheered her up x

  10. Such a nice thing to send along as little things can make a huge difference x

    1. admin

      It is always the little things that mean the most x

  11. nicol

    how lovely are they? this is so heartwarming knowing it can brighten her or anyone up

    1. admin

      They are such a great charity, and really do put a smile on faces x

  12. What a completely lovely idea. It must be so nice to have a little parcel to cheer you up when times are rough. Hope things improve for her soon. It must be hard

    1. admin

      Thank you, it did come at the right time to put a smile on her face x

  13. Thank you so much for sharing such a personal post. This charity sounds great and I’ll definitely be going to find out more about them. Sending love to you and your family xx

  14. Sending in lots of love to little C! and what an amazing way to put a smile on anyones face! I am sure your daughter was over the moon!

    1. admin

      Thank you, and she was over the moon x

  15. I’m sorry to hear about the diagnosis I know it’s a difficult thing to live with – but it’s sounds like a fantastic charity!

    1. admin

      Thank you, and it is a great charity x

  16. Claire

    What a lovely gift idea, I’m glad she liked it 🙂

    1. admin

      Was the perfect gift for her x

  17. What a wonderful charity 🙂 I have EDS and struggle with chronic fatigue, it’s the little things like this that can really make a difference 🙂

    1. admin

      I am looking at EDS at the moment, as C has some new symptoms and someone suggested it could be this. So sorry you are suffering x

  18. What a lovely gift for her, they sound like a great charity

    1. admin

      Ideal gift for her, they are a great charity x

  19. Smile for me sounds like an amazing charity! Glad it made your daughter happy

    1. admin

      It is a great charity and it did make her smile x

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