The ups and downs of living with a teen

a-little-trip-out

5 Things I Have Learnt About Caring

As regular readers will know, our lives have changed this year due to my Daughter having a chronic illness.

Living with someone who has disabilities can be very hard and normal everyday things we all take for granted, are suddenly not so easy.  I have listed 5 things that have changed since she has become ill.

  1. energy – Even normal everyday things like getting dressed can wipe her out so we have to take time and prepare her, so that she is not rushing and can do things in her own time. If you know you are going out give them plenty of warning, dont rush them, if you are going to be late don’t stress these things happen.
  2. personal hygiene – something we all take for granted, brushing our teeth and washing.  Some days she can barely stand and with the pains she suffers even brushing her teeth can be a major task.  She used to love showers, but we have had to change to baths as she finds it hard to stand in the shower.  But baths are tricky for her to get in and out of and we have had to find easier ways for her to get in and out of the bath.
  3. mobility – Although my Daughter was never an athlete, she used to love being out and about, she had just got her freedom and was loving her life, before her illness struck.  Now when going out, she has to use a wheelchair, this has been an adventure for all of us, as steering a wheelchair is not as easy as when she was in a buggy.  One thing she has moaned about is she gets uncomfortable in it, one thing I have moaned at is you can not hang shopping bags on the handles.  Also, we have had to change plans when it has rained as she would have got soaked.
  4. Exercise – My Daughter has physio (when she is well enough to attend) and has exercises to do whilst at home, some days she can not cope with them at all, other days she can manage to do them, they are nothing excessive but it is important to (nag) and encourage them to do some exercise to keep their muscles working.
  5. Laughter – We have all heard the quote ‘laughter is the best medicine’.  I am a strong believer that this is true, instead of going into a panic or crying when my Daughter has collapsed in my arms or onto the floor when she couldn’t walk we would laugh about it and call it a bambi day.  We try and lighten up the mood around how she is feeling or what kind of day she is having, her brother is great for this.

Betterlife, have a great range of aids to help with any disability throughout the home and outdoors, we brought my Daughters wheelchair from them, which is this one.  It was delivered quickly and was very easy to assemble and has made life so much easier.

As already mentioned we have found a few things that we needed to address and Betterlife kindly sent me a poncho for rainy days, which my Daughter was mortifed at when I showed her, but as she is fast approaching 13 I can understand, but it will keep her dry.  A cushion for her to sit on, as it can get uncomfortable for her, depending on how long she is in her chair for, and a bag that attaches to the wheelchair, which means I can put shopping in there and carry what I need, which to me is priceless.

This is a sponsored post and as stated I had already used Betterlife before writing this post, all comments are my own

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9 Comments

  1. Your daughter is beautiful, it breaks my heart to hear that she had this unfortunate disability. You are strong and seems like a very good mother. It is so important to find the positive things when things get hard. Bless x

    1. Thank you, it is heartbreaking, harder at first now we are getting used to it, although I do bottle it up and find it very hard x

  2. I understand from a disabled point of view. I know how hard it is for my partner when I am bed ridden and he needs to do all this. I see the pain on his face of seeing me that way. He tries to make me laugh, but I am a moody little one. But he tries his best. Just like anyone else would, myself included.

    1. Sounds like you have a great partner, it is very hard caring for someone you love so much, not in the sense of the work involved, just the heartbreak of them needing the care and the pain and suffering. I know with my Daughter when to just leave her and when to chat away and have a laugh.

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