The ups and downs of living with a teen

My Week - 12/06/16

My Week – 12/06/2016

I can not believe another week has flown by us, and it is time for my weekly update.

It has been quite a rollercoaster and emotional week this week. My Daughter managed to go into school on Tuesday afternoon, but could not stay for her full 2 hours and I got a call to pick her up early.

Wednesday we had our CAHMS appointment, and nothing prepared me for just how the meeting would go.  We went along and had to wait a bit as they had an emergency, so I sat answering my Daughters questions on what it was all about, I had no idea and tbh thought it would be a waste of time.  We finally go into our meeting and sat chatting with the person seeing us, who was lovely.  She asked loads of questions and both myself and my Daughter answered, she asked if maybe we had thought of counselling and I said no, but thought it wasn’t needed, I explained to my Daughter what it was and she just shrugged and said no. We carried on with the meeting and talked some more, and then she asked my Daughter a question, that hurt me so much.  She asked how she felt about her illness and she answered she was scared and started crying, she opened up and cried her little heart out, by this stage while rummaging through my handbag for tissues I was crying as well.  We have always been honest and have talked about how she is feeling, but she has never said any of the things she spoke about in there.  We spoke again about counselling, and I explained I could be there if she wanted, but it might be worth going in on a one to one with the counsellor as they are not personally involved, she agreed to it, and I am so glad she did, as she obviously is not coping as well as we thought she was.  The appointment was left that we need to speak to our GP or Consultant to arrange it, and if not to go back to see her and they will arrange the counselling.

I had to take her to see the GP regarding pain she is having, and to discuss medication, so we asked then, as they have not heard from CAHMS yet, they can not do anything and it is usually them that arrange it.  So got to contact them and see what happens next.

I have also been having a battle with school regarding her education, I am very lucky to have a made a great new friend who is a huge support and 3 years ahead of me, she is giving me so much help and support and information I need.  I have been emailing school regarding further support and maybe a home tutor for now, and also sent a copy of a letter that was sent out to all Head Teachers in September regarding pupils with ME/CFS, and have also emailed someone else who is going to speak to me next week.  I think once this is sorted things will be easier for my Daughter.

After the CAHMS appointment I came home and my Daughter was totally wiped, so she went to bed to rest, my husband took me out as he could see just how affected I was, and meant we could talk openly without ears listening.  So my Daughter stayed with my parents and I had a few drinks and amazing cocktail.

We still have not got to our swimming date as she has not been able to, I have been offering her another girls trip out but that is on hold.

So as you can see I have been very quiet again this week, but because I have been on a few missions and on a one woman crusade.

Hopefully next week, I will have some encouraging news, but I have a lot of things to post this week, and you will probably get bored of me.

Hope you have all had a good week

Thank you for visiting x

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42 Comments

  1. Keep doing what you’re doing, nobody will get bored of reading your weekly updates. I hope everything goes well with the next stage of the CAHMS meetings and your Daughter can lead a more positive life 🙂

    GL x

    1. Oh thank you, I am just feeling a bit of a failure at the moment as I had no idea what she had been hiding and bottling up, but although it was a tough week, I think it needed to happen to move on and give her the help and support she needs x

    1. Thank you, hopefully this week will be better in getting things sorted, she wasn’t up to school today and she has physio tomorrow which may just knock her back down for the rest of the week x

    1. Thank you, last week was really tough, but in a good way as it really opened my eyes to a lot, and also means my Daughter will hopefully get the support she needs and that I have been fighting for x

    1. It is just too much for her now, but after speaking to others I think this is why she is having so many crashes, I have learnt a lot these past few weeks, which is making it easier to understand things x

    1. Thank you it was a difficult meeting but worth it I think it was needed and hopefully can make a huge difference to my daughter x

    1. I have spoken to her on what counselling is all about as I had it once, and it was great and really did help, and I do think it is what she needs x

  2. Awww bless you, sounds like it’s been one of those touch weeks. Hope it will be full of good cheers for you guys this week

    1. Thank you this past couple of weeks have been very tough and I have been really struggling, but am on a determined faze now and things will improve x

    1. Thank you, we had physio this morning and all agreed swimming once a week will be a great help and fun for her so we are off swimming this week x

    1. It does help a lot, and it is great that she has known my Daughter since she was 4 years old, she is such a great support and gives me a lot of help and points me in the right direction x

    1. It is hard, but she is such a tough little thing she will get over this and I just know one day she will be living a normal life again x

    1. I think it isn’t the illness so much, as we have always been open and honest with her, I think it is more the isolation and the not living a normal life, she desperately wants and not knowing if this is her life forever. It broke my heart I am very protective over her and when she broke down I broke down as well as it was so hard.

    1. Thank you, it is like climbing a huge brick wall to be faced with yet another one, but we are getting there slowly and we will get through this, I have some amazing support now x

  3. 🙁 must have been heartbreaking to hear the things she had said for the first time. hope everything gets better

  4. I am so sorry for everything you are going through. Obviously it’s awful for Caitlin but it is taking its toll on you too. Counselling sounds like it could be a good way forward.

    You’re doing a great job, Sam! You are a Mum in a million!

    1. Thank you, it was an emotional meeting but I think it was worth it, she obviously needs to talk about it, and it is hard for her. I have had a couple of bad weeks and seeing her break her heart broke mine, I haven’t been myself, but I am now back to me and have some great support from someone going through the same who has known her since she was 4 from her Primary School, and think we will get to some kind of normality at some stage x

  5. I’m so sorry you guys are still having such a hard time but it sounds like having someone to talk to could really help, we’ve had a CAHMS appointment recently too and it can be so hard but they have been amazing x

    1. Thank you, we did not really know what to expect and if I am honest thought it would be a complete waste of time, but it was so helpful, and the person we had the meeting with has been great and been in constant contact this week x

  6. Oh wow, what an intense week for both of you. You both must find things very frustrating. On a positive note it’s brilliant that she opened up at the CAHMS appointment as is going forward with the counselling. Sometimes it’s easier to open up with strangers. Chase CAHMS for that letter to the GP and don’t feel your hassling them. They need a good prod at times xxx

    1. It is a very frustrating time, but was such a good thing her opening up, the counselling is on a long list of current battles we are having.

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