My Week – 12/06/2016

I can not believe another week has flown by us, and it is time for my weekly update.

It has been quite a rollercoaster and emotional week this week. My Daughter managed to go into school on Tuesday afternoon, but could not stay for her full 2 hours and I got a call to pick her up early.

Wednesday we had our CAHMS appointment, and nothing prepared me for just how the meeting would go.  We went along and had to wait a bit as they had an emergency, so I sat answering my Daughters questions on what it was all about, I had no idea and tbh thought it would be a waste of time.  We finally go into our meeting and sat chatting with the person seeing us, who was lovely.  She asked loads of questions and both myself and my Daughter answered, she asked if maybe we had thought of counselling and I said no, but thought it wasn’t needed, I explained to my Daughter what it was and she just shrugged and said no. We carried on with the meeting and talked some more, and then she asked my Daughter a question, that hurt me so much.  She asked how she felt about her illness and she answered she was scared and started crying, she opened up and cried her little heart out, by this stage while rummaging through my handbag for tissues I was crying as well.  We have always been honest and have talked about how she is feeling, but she has never said any of the things she spoke about in there.  We spoke again about counselling, and I explained I could be there if she wanted, but it might be worth going in on a one to one with the counsellor as they are not personally involved, she agreed to it, and I am so glad she did, as she obviously is not coping as well as we thought she was.  The appointment was left that we need to speak to our GP or Consultant to arrange it, and if not to go back to see her and they will arrange the counselling.

I had to take her to see the GP regarding pain she is having, and to discuss medication, so we asked then, as they have not heard from CAHMS yet, they can not do anything and it is usually them that arrange it.  So got to contact them and see what happens next.

I have also been having a battle with school regarding her education, I am very lucky to have a made a great new friend who is a huge support and 3 years ahead of me, she is giving me so much help and support and information I need.  I have been emailing school regarding further support and maybe a home tutor for now, and also sent a copy of a letter that was sent out to all Head Teachers in September regarding pupils with ME/CFS, and have also emailed someone else who is going to speak to me next week.  I think once this is sorted things will be easier for my Daughter.

After the CAHMS appointment I came home and my Daughter was totally wiped, so she went to bed to rest, my husband took me out as he could see just how affected I was, and meant we could talk openly without ears listening.  So my Daughter stayed with my parents and I had a few drinks and amazing cocktail.

We still have not got to our swimming date as she has not been able to, I have been offering her another girls trip out but that is on hold.

So as you can see I have been very quiet again this week, but because I have been on a few missions and on a one woman crusade.

Hopefully next week, I will have some encouraging news, but I have a lot of things to post this week, and you will probably get bored of me.

Hope you have all had a good week

Thank you for visiting x

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42 Comments

  1. 12/06/2016 / 9:45 pm

    Keep doing what you’re doing, nobody will get bored of reading your weekly updates. I hope everything goes well with the next stage of the CAHMS meetings and your Daughter can lead a more positive life 🙂

    GL x

    • admin
      Author
      12/06/2016 / 10:37 pm

      Oh thank you, I am just feeling a bit of a failure at the moment as I had no idea what she had been hiding and bottling up, but although it was a tough week, I think it needed to happen to move on and give her the help and support she needs x

  2. 13/06/2016 / 6:29 am

    Oh no, I hope this next week is better for you and your daughter settles in school.

    • admin
      Author
      13/06/2016 / 3:12 pm

      Thank you, hopefully this week will be better in getting things sorted, she wasn’t up to school today and she has physio tomorrow which may just knock her back down for the rest of the week x

  3. 13/06/2016 / 9:10 am

    So sorry that you have been having such a tough week 🙁 I can’t imagine how difficult it must be and I hope things get better soon xx

    • admin
      Author
      13/06/2016 / 3:11 pm

      Thank you, last week was really tough, but in a good way as it really opened my eyes to a lot, and also means my Daughter will hopefully get the support she needs and that I have been fighting for x

  4. Harriet from Toby & Roo
    13/06/2016 / 1:02 pm

    I’m so sorry she didn’t feel up to the whole 2 hours – that is so hard on you all and disappointing for her. Big hugs!

    • admin
      Author
      13/06/2016 / 3:10 pm

      It is just too much for her now, but after speaking to others I think this is why she is having so many crashes, I have learnt a lot these past few weeks, which is making it easier to understand things x

  5. 13/06/2016 / 3:25 pm

    Sounds like a difficult meeting, but hopefully quite cathartic – hope the counselling helps your little girl!

    • admin
      Author
      14/06/2016 / 2:27 pm

      Thank you it was a difficult meeting but worth it I think it was needed and hopefully can make a huge difference to my daughter x

  6. 13/06/2016 / 3:55 pm

    Counselling should help your daughter and it is definitely worth doing. I hope next week is better.

    • admin
      Author
      14/06/2016 / 2:26 pm

      I think it will help her just need to sort out who is arranging it which is my current battle x

  7. 13/06/2016 / 5:33 pm

    Good luck to your daughter going to counselling it can be a wonderful thing to do and really help 🙂 x

    • admin
      Author
      14/06/2016 / 2:25 pm

      I have spoken to her on what counselling is all about as I had it once, and it was great and really did help, and I do think it is what she needs x

  8. Anosa
    13/06/2016 / 5:34 pm

    Awww bless you, sounds like it’s been one of those touch weeks. Hope it will be full of good cheers for you guys this week

    • admin
      Author
      14/06/2016 / 2:20 pm

      Thank you this past couple of weeks have been very tough and I have been really struggling, but am on a determined faze now and things will improve x

  9. 13/06/2016 / 7:14 pm

    Sorry that you’re having a tough week lovely. Hope your daughter settles soon. x

    • admin
      Author
      14/06/2016 / 2:20 pm

      Thank you, I am hoping things get better each day x

  10. 13/06/2016 / 8:00 pm

    I hope next week is a better one and she gets to go on the swimming date.

    • admin
      Author
      14/06/2016 / 2:19 pm

      Thank you, we had physio this morning and all agreed swimming once a week will be a great help and fun for her so we are off swimming this week x

  11. 13/06/2016 / 9:34 pm

    It’s great that you’ve found an ally who is helping you! Having someone to talk to about these things must help a lot.

    • admin
      Author
      14/06/2016 / 2:18 pm

      It does help a lot, and it is great that she has known my Daughter since she was 4 years old, she is such a great support and gives me a lot of help and points me in the right direction x

  12. 13/06/2016 / 10:14 pm

    I understand it must be very difficult for her but she is trying so hard and I hope that one day things will get better. Well done for being so supportive xx

    • admin
      Author
      14/06/2016 / 2:17 pm

      It is hard, but she is such a tough little thing she will get over this and I just know one day she will be living a normal life again x

  13. 14/06/2016 / 8:10 am

    That’s so sad that she’s obviously not coping with her illness but it’s such a good thing that she has agreed to councilling. x

    • admin
      Author
      14/06/2016 / 2:16 pm

      I think it isn’t the illness so much, as we have always been open and honest with her, I think it is more the isolation and the not living a normal life, she desperately wants and not knowing if this is her life forever. It broke my heart I am very protective over her and when she broke down I broke down as well as it was so hard.

  14. 14/06/2016 / 11:01 am

    Oh hun, I am so sorry that you have been having such a tough week, I can’t imagine how hard it is for you x

    • admin
      Author
      14/06/2016 / 2:12 pm

      Thank you, it is like climbing a huge brick wall to be faced with yet another one, but we are getting there slowly and we will get through this, I have some amazing support now x

  15. Hannah
    14/06/2016 / 11:58 am

    Hope this next week if a bit better for you lovely x

    • admin
      Author
      14/06/2016 / 2:11 pm

      Thank you x

  16. 14/06/2016 / 1:00 pm

    June has gone by so fast hasn’t it. I can’t believe it’s mid month already. Enjoy the rest of the month.

    • admin
      Author
      14/06/2016 / 2:11 pm

      I know it is hard to believe we are in the middle of June already x

  17. nicol
    14/06/2016 / 1:38 pm

    🙁 must have been heartbreaking to hear the things she had said for the first time. hope everything gets better

    • admin
      Author
      14/06/2016 / 2:11 pm

      It did break my heart, I thought we were open and honest I had no idea she was bottling so much up x

  18. 14/06/2016 / 7:47 pm

    I am so sorry for everything you are going through. Obviously it’s awful for Caitlin but it is taking its toll on you too. Counselling sounds like it could be a good way forward.

    You’re doing a great job, Sam! You are a Mum in a million!

    • admin
      Author
      14/06/2016 / 9:49 pm

      Thank you, it was an emotional meeting but I think it was worth it, she obviously needs to talk about it, and it is hard for her. I have had a couple of bad weeks and seeing her break her heart broke mine, I haven’t been myself, but I am now back to me and have some great support from someone going through the same who has known her since she was 4 from her Primary School, and think we will get to some kind of normality at some stage x

  19. 15/06/2016 / 9:00 am

    I have everything crossed that this week is a much better one than the last one! I often think of your both and send you best wishes!

    • admin
      Author
      15/06/2016 / 9:42 am

      Thank you, that is so lovely to hear x

  20. Emma
    17/06/2016 / 10:01 pm

    I’m so sorry you guys are still having such a hard time but it sounds like having someone to talk to could really help, we’ve had a CAHMS appointment recently too and it can be so hard but they have been amazing x

    • admin
      Author
      18/06/2016 / 8:55 am

      Thank you, we did not really know what to expect and if I am honest thought it would be a complete waste of time, but it was so helpful, and the person we had the meeting with has been great and been in constant contact this week x

  21. 27/06/2016 / 8:44 pm

    Oh wow, what an intense week for both of you. You both must find things very frustrating. On a positive note it’s brilliant that she opened up at the CAHMS appointment as is going forward with the counselling. Sometimes it’s easier to open up with strangers. Chase CAHMS for that letter to the GP and don’t feel your hassling them. They need a good prod at times xxx

    • admin
      Author
      29/06/2016 / 11:45 am

      It is a very frustrating time, but was such a good thing her opening up, the counselling is on a long list of current battles we are having.

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