The ups and downs of living with a teen

a-little-trip-out

A Little Trip Out

Today, I have done something that I have wanted to do for so long, I took my Daughter out on a little trip out. Yes that is right you read it correctly, we went out and had a girls trip out.

As you will be aware, she has CFS/ME, this means that she is wiped out and has trouble walking, so this has been something we have both missed doing.

This week, has not been a good week for her, she has been bed bound for most of it, and totally wiped out, and really not well at all.

We finally got her a wheelchair this week, and it meant that she could start to enjoy life a bit.

I needed to pop out into town for a few bits, so she got up and dressed, and I told her the fresh air would do her good, as would different surroundings.

So I helped her into the car and off we went, I managed to get the wheelchair out of the boot without causing any damage to the car or me, and in she got and off we went.

We had a great time, she got some treats and we did not crash into anything, and it was lovely to see her enjoying herself and smiling.

She is back home now, totally worn out and back in bed but it was lovely, just me and her on our own, and it means that we can now do this a lot more.

We also had some great news today, that she has been awarded a mobility badge, which means I can take her swimming, which she has missed as I can park right outside the doors, this will also be great exercise for her as well, and her physio is very supportive of this and thinks it is great.

 

 

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42 Comments

  1. I am so pleased to hear that you got the blue badge! This will make things so nuch easier for you guys when out. Sounds like you had a great day out 🙂

    1. Thank you, it will make a huge difference, and mean that in the summer on her good days we can get out and about. We were only out for an hour but it was lovely, have missed our little trips out just the two of us. I managed to get her laughing in the picture as she looked around and laughed as she saw me take the picture x

    1. I know she did, I caught her unaware she looked around and laughed at me for taking a photo, it wore her out but was lovely to get out with her x

  2. Aww, this is lovely to see. So glad you managed to have a great time with her. Look forward to reading about more adventures 🙂

    Corinne x

    1. It will make all the difference and I managed ok with getting it in and out of the car on my own as it is quite heavy and bulky. It was so nice spending a bit of us time like we used to do x

  3. I am so pleased for the two of you to hear you are getting out and about. The mobility badge sounds like a great progress too. Swimming is a great way to get some exercise for anyone. Wishing you and your beautiful family a great weekend x

    1. It was lovely our first trip out, it was before christmas when she last went out around the shops, it has just been appointments, it really cheered her up although she was wiped out last night. Hope you have a great weekend as well x

  4. When I was a teenager one of my friends had ME. She used to be exhausted after a day out, but she always felt it was worth it to be out and about. I’m so pleased that your daughter has got a wheelchair and a mobility badge as well now, I bet they’ll make a huge difference x

    1. It is exhausting for them having a day out but it is worth it, as although the after effects are not nice they have had a normal day like everyone else and been out and had fun, which is great medicine in my eyes. The wheelchair is a god send already and so will the mobility badge when it comes through x

  5. what a great post and indeed blog, my daughter too sufferes with CFS / ME as well as CVS and autism. I can totally understand the struggle.
    I enjoy taking my daughter out too, but it wipes her out for days, thats why we plan and have a really good day.
    seeing them smile and enjoying the day makes it all worth while 🙂

    1. I am so sorry your daughter suffers as well,it does wipe them out but the smile on their faces when they are out and about enjoying themselves makes it all worth it.

  6. Oh fantastic. I also have m.e/cfs among other conditions so can understand how hard it is. Have you tried hydrotherapy. I really enjoyed it. Prefer it to a normal swimming pool x

    1. Sorry you are suffering also, no we have not tried hydrotherapy, will look into that as it sounds like a great idea and really helpful x

    1. Thank you, it was pretty amazing to just be out with my special girl, and knowing we could go where we wanted without knowing she could only walk a few steps.

    1. She loves it, as she can go out, her friends are now desperate for her to go out with them now and are happy to push her around, I feel that with some control (as it will tire her out) she can start to also have a bit of a social life again 🙂

    1. It has made all the difference, and when the badge comes through it will make a lot of difference as will be easier parking, which we found yesterday, having to try and get her out of the car and the wheelchair, but my husband was with me yesterday which made it a lot easier x

    1. We had a great time, and it was something we have been missing doing, the blue badge will be a huge help and she is looking forward to swimming x

    1. Thank you, it really does mean so much to be able to get out again and although it wipes her out totally, I do believe it will do her good as wellx

  7. I’m so glad you were able to get out of the house and spend the day with each other, plus the fact you can now take her swimming because of the mobility badge is amazing… I can’t wait to read about more of your adventures! x

    1. Thank you, it was amazing going out and knowing she could have a bit of fun and a few treats, the first thing we are doing when her badge comes through is going swimming. There will be plenty more adventures to come x

  8. Aw, that’s great that you managed a trip out, I bet you had fun. Nothing like venturing out every now and again to raise the spirits a little. 🙂
    Look forward to reading future adventures….

    1. Thank you, we had a great trip out, not been able to venture out since but will hopefully start to get out and about soon x

  9. That’s fantastic news! It’s great that you managed to get out and about and the swimming will be really good, even if it’s just floating around x Hope you have a nice Bank Holiday x

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