Today is the start of ME/CFS Awareness Week, and everyone is going blue, so if you see a lot of blue around you now know why.
As you will know my Daughter has been diagnosed with this chronic illness, and it has changed our lives completely. Before she was diagnosed I had heard of ME/CFS but was never 100% sure what it actually was, and just how much it can affect daily life.
A lot of people also struggle daily with living needs, of costs, there are benefits that can help make living a little easier, this ESA number will be able give your advice.
Today for example, after a relaxing weekend she can barely walk, is in a lot of pain and totally wiped out, resulting in no school. We now have to live our lives day by day, depending on whether she has a good day, which means she can cope with school for a couple of hours and be able to walk. Or whether it is a bad day where she is in pain and either can not walk or can hardly walk.
Socialising is very hard also, as she gets so worn out, and if we do have anything planned we have to give her as much rest as we can before hand, and know that the next day she will be having a bad day or a few bad days.
There is a great little video (I have shared this before) that shows just what it is like for those who suffer with ME/CFS. I think this is worth sharing again, as a lot of people just do not understand what it is like living with this chronic illness.
This is what my Daughter and many others have to face each day.
There is a lot of information out there regarding ME/CFS and I will be supporting this awareness week everyday.
The feature profile is in fact my personal facebook profile, which I have also changed in support.
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