Living with Chronic Fatigue Syndrome/ME

My Daughter suffers with CFS this page is to share our story both as sufferer and carer, and to maybe help others feel that they are not alone

#MillionsMissing

Today my news feed on all my social media platforms has been over run with #MillionsMissing. It is all about showing support to those suffering with ME/CFS and showing what sufferers are missing.  The aim… View Post

A Little Trip Out

Today, I have done something that I have wanted to do for so long, I took my Daughter out on a little trip out. Yes that is right you read it correctly, we went out… View Post

A Letter to my beautiful Daughter

Dear Daughter Today is ME Awareness Day and I am writing this letter to you, to let you know how amazing both Dad and I think you are. You have had a very rough year… View Post

Living with a child who has ME/CFS

I wrote a post yesterday about ME/CFS Awareness Week, and shared a video taken from the ME Associations website, which really shows what it is like living with ME/CFS.  Today I am going to write… View Post

ME/CFS Awareness Week

Today is the start of ME/CFS Awareness Week, and everyone is going blue, so if you see a lot of blue around you now know why. As you will know my Daughter has been diagnosed… View Post

When your mobility suffers

Last year, my Daughter was a normal 12 year old going out with friends, going to school and enjoying life.  When she became ill in December, and recently being diagnosed with CFS, her mobility has… View Post

CFS/ME

This is the first post, in what will become a regular feature, I will start by recapping on our story of how we got here. On New Years Eve, we were with friends about to… View Post

When your child is ill

As parents we have all been there, with a child who is unwell.  We have sat up at nights with them when they can not sleep, we have cleared away the sick, changed beds at… View Post