Living with Chronic Fatigue Syndrome/ME

My Daughter suffers with CFS this page is to share our story both as sufferer and carer, and to maybe help others feel that they are not alone

A Mothers Pain

As you will know May is ME Awareness month, and I have been raising awareness, I also throughout the year give updates on C.  One thing I rarely do is talk about how it affects… View Post

ME Awareness Month – Week 3

As you will all be aware by now, May is ME Awareness month, and for my Daughter and the 1000’s of other sufferers, I am raising awareness of this horrible illness, and hopefully trying to… View Post

ME Awareness Month – Week 2

May is ME Awareness month, I posted week 1 last week which you can read here, and I have also posted our story of living with ME and how it affects us all as a… View Post

ME Awareness Month – Week 1

      As you will know my Daughter who is 13 has been diagnosed with ME.  We have been living with this chronic illness since December 2015, where she became ill following having Glandular… View Post

How we cope with ME/CFS

As regular readers know, my Daughter C is 13 years old and has been living with ME/CFS since new years eve 2015, in those few moments her life changed forever.  I thought as it has… View Post

A Mothers Pain

As a parent all you want for your child is to be happy and healthy and enjoy their life, from that moment they are placed in your arms you have dreams for them, you want… View Post

Smile For ME

As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year.  It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis.… View Post

5 Things I Have Learnt About Caring

As regular readers will know, our lives have changed this year due to my Daughter having a chronic illness. Living with someone who has disabilities can be very hard and normal everyday things we all… View Post

A Mums Letter From The Heart

Dear Mums and Dads of Children with a chronic illness I want you to know you are not alone, although you may feel very alone at times. I know what it is like to have… View Post

Make Your Home Accessible this Summer

Summer is a great time for a get-together, whether it’s a big family meal, a kids’ party or a few friends having drinks al fresco. It should be a time for everyone to enjoy each… View Post