I know I said last month I was glad to welcome August, but can honestly say August was the hardest month I have ever had, it really has been a nightmare.
I am not going to start with C this month, I will update about her further down. As you will remember from last month, my Mother in law was staying with us, following my Father in laws funeral, and she had a fall and broke her shoulder and badly cut her arm. Well, a few days after that we had to call the ambulance again, and she was blue lighted into hospital, she had renal failure and what we are affectionately calling her doo lally stage. She ended up spending nearly a week in hospital, with us visiting every day and my sister-in-law visiting once. This obviously meant she needed to stay with us longer as she was not well enough to look after herself.
This meant that I had to care for her by helping her wash and dress, take her to hospital appointments, run around getting everything for her, plus looking after C. Which also explains why I have been so quiet this month, I literally could not sit down and type two words, unless I found the energy at midnight.
I had hoped I could share some family days out, as we had promised C we would try to get out and do something together, as she really wanted to try to restart her tuition in school, and wanted to try to go out. Sadly, this did not happen as we had to care for my mother in law, as my sister-in-law could not even come over for half a day to give us a break, we even had to cancel our opticians twice.
Then two weeks ago, we managed to rebook and attend our opticians appointment, how little did we know then that this would have such dramatic effects on us. They now take a picture of the whole eye, and C’s brought up something that concerned the optician, and she wanted it investigated further, so had to go back in a few days later to collect a letter of referral for treatment at eye casualty.
We spent 9 hours at the hospital firstly having her eyes checked as it showed problems with her optic nerve, we were then transferred to children’s A&E where she was given and emergency MRI, before being taken to a children’s assessment ward, where she had further tests. We eventually left about 9pm and told to return the next morning for a lumbar puncture, as she had excess fluid around her brain causing pressure to the optic nerve. We went back and sat around for hours before being sent home as they decided they wanted the full report not just the quick report and that would be ready this Thursday.
As you can imagine, it has been a pretty tense week, and Thursday I kept ringing to see if the report was ready,as I had been reading just how dangerous this could be. Eventually Friday lunchtime, I got a call and told to go straight in. What happened next I never want to go through again. After waiting for an hour, they took her in for the lumbar puncture, they just used local anesthetic around the area, my poor girl was amazing, but sadly they tried 3 attempts to do it and failed. She was in pain and crying and all I could do was try to hold her still and soothe her. They gave up after the third try to let her rest and have some pain relief. A couple of hours later they tried again, this time with laughing gas, she was petrified, I was trying not to show how it was affecting me, but somehow we all managed to keep her still and they did a successful lumbar puncture. The pressure was more than they expected.
We were advised that following the procedure she would have blinding headaches for a day or two, and offered the choice of being admitted or could go home and call if we needed anything. She wanted to come home, but her 24/7 migraines that she has had for nearly 3 years have gone, but we are not sure how successful as she has the blinding headache from the procedure, but does say it is a different type of headache.
We now have to wait to speak to the consultant next week, and then be referred to various consultants and new medication etc.
All in all it has been a pretty tough month, my head is mashed and I am shattered, but I feel so positive to how this will help C, and feel we could eliminate a lot of her conditions.
I will keep you posted, on how we get on.
In case you are still trying to sort out getting into the back to school routine, I did manage a few posts that may help you.
If you enjoy reading my blog, why not pop over to my friend Katrina’s blog Trinimamabebe to see what she has been up to.
Hope August has been a good month for you all x