Smile For ME

As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year.  It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis.

I have not really updated much lately, she is now back in school for 3 hourly lessons a week, we have tried to increase but she just can not cope with the increase at the moment.  Last Wednesday, she crashed and was in bed suffering all day.  Thursday she was determined to go in for her tuition, and although she struggled she got through it.  This would not be possible without the huge support of her tutor who is great with her, and C gets on well with her.

We have had another symptom emerge, with clicking and painful mouth joints, it hurts to eat and talk.  On looking this up and speaking to other parents, this is a condition of ME, but also could be something else which presents itself like ME.  So am waiting to get her in to see our GP who understands the condition.

So as you can probably gather she has been having a pretty rough time of it lately.  So when the doorbell rang on Saturday morning and our lovely postman handed me a parcel for C, I could see through the wrapper that it was a parcel from Smile For ME.  This is a charity where you can nominate a child who has this chronic illness, tell them a bit about what they like and they send out a present tailor made for what they like.

Her parcel contained 5 gifts all wrapped in the Smile For ME paper with a little gift tag (excuse the bad photos but her curtains were closed due to the light affecting her and she wanted to draw).

Smile For ME, is a charity that are able to send these gifts to put a smile on a childs face, by working hard through fundraising and donations.

Please if you have a spare few minutes visit there site and see all the good work they do.
I can not thank them enough for the smile they put on C’s face and it was like they knew she was going through a rough patch and struggling.

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40 Comments

  1. Milly
    11th October 2016 / 4:50 pm

    This is such a lovely concept and a wonderful gift. Sending love to you and C!

    • admin
      11th October 2016 / 5:37 pm

      Thank you, it is such a great charity

  2. 11th October 2016 / 6:36 pm

    Aw bless her, my joints click too especially my neck, arms and hips, she might have hypermobile joints which causes friction? Its great that Smile sent a nice parcel through for her x

    • admin
      11th October 2016 / 7:29 pm

      I think she does have hypermobile joints you should see what she can do with her legs (makes me feel sick), I was talking to other parents today and it could be an indication to something else which we hope its not. It was a great parcel x

  3. Kathryn Watson
    11th October 2016 / 7:37 pm

    I am so sorry to hear your daughter is struggling, but what a beautiful idea this is, I am going to check it out to see if I can help in some way xx

    • admin
      11th October 2016 / 8:12 pm

      She is having a hard time, but trying so hard. It is such a lovely idea and really does help the person nominated x

  4. 11th October 2016 / 6:41 pm

    Lovely gift. I don’t know much about this illness, but I hope it will ease up with the time. Hugs and prayers to you!

    • admin
      11th October 2016 / 7:27 pm

      It was the perfect gift for my very arty daughter thank you x

  5. Christine Dodd
    11th October 2016 / 7:45 pm

    What a lovely surprise. There are a lot of conditions related to hypermobility as I am just finding out myself. Sending positive thoughts your way.

    • admin
      11th October 2016 / 8:11 pm

      It was a lovely surprise, I know I am finding this out as well x

  6. 11th October 2016 / 7:49 pm

    Oh wow this is so lovely. Such a great gift and I love the concept of putting a smile on someone elses face. So thoughtful and kind xxx

    • admin
      11th October 2016 / 8:10 pm

      It was a great surprise for her and came at just the right time, it is such a great idea x

  7. Baby Isabella
    11th October 2016 / 8:26 pm

    What a fantastic gift and a great idea to raise a smile for a loved one. My mummy’s friend has ME and she’s such a wonderful, strong women.

    • admin
      11th October 2016 / 8:57 pm

      It was a great gift and ME does make you stronger x

  8. 11th October 2016 / 7:35 pm

    This is one thing I love about blogging, the ability to raise awareness, share experiences and educate. I have learnt so much about illnesses from blogs than I ever have elsewhere and it has really opened my eyes x

    • admin
      11th October 2016 / 8:13 pm

      Blogging is great to raise awareness, and the good thing about blogs is that they tell it from a personal side rather than a medical side x

    • admin
      11th October 2016 / 9:34 pm

      Thank you, it certainly cheered her up x

  9. 11th October 2016 / 10:27 pm

    Such a nice thing to send along as little things can make a huge difference x

    • admin
      12th October 2016 / 10:10 pm

      It is always the little things that mean the most x

  10. nicol
    11th October 2016 / 11:22 pm

    how lovely are they? this is so heartwarming knowing it can brighten her or anyone up

    • admin
      12th October 2016 / 10:09 pm

      They are such a great charity, and really do put a smile on faces x

  11. 12th October 2016 / 8:45 am

    What a completely lovely idea. It must be so nice to have a little parcel to cheer you up when times are rough. Hope things improve for her soon. It must be hard

    • admin
      12th October 2016 / 10:08 pm

      Thank you, it did come at the right time to put a smile on her face x

  12. Sarah, Things Sarah Loves
    12th October 2016 / 2:00 pm

    Thank you so much for sharing such a personal post. This charity sounds great and I’ll definitely be going to find out more about them. Sending love to you and your family xx

    • admin
      12th October 2016 / 10:05 pm

      Thank you x

  13. 12th October 2016 / 2:32 pm

    Sending in lots of love to little C! and what an amazing way to put a smile on anyones face! I am sure your daughter was over the moon!

    • admin
      12th October 2016 / 10:04 pm

      Thank you, and she was over the moon x

  14. 12th October 2016 / 3:06 pm

    I’m sorry to hear about the diagnosis I know it’s a difficult thing to live with – but it’s sounds like a fantastic charity!

    • admin
      12th October 2016 / 10:04 pm

      Thank you, and it is a great charity x

  15. Claire
    12th October 2016 / 6:37 pm

    What a lovely gift idea, I’m glad she liked it 🙂

    • admin
      12th October 2016 / 10:03 pm

      Was the perfect gift for her x

  16. 12th October 2016 / 7:37 pm

    What a wonderful charity 🙂 I have EDS and struggle with chronic fatigue, it’s the little things like this that can really make a difference 🙂

    • admin
      12th October 2016 / 10:01 pm

      I am looking at EDS at the moment, as C has some new symptoms and someone suggested it could be this. So sorry you are suffering x

  17. 12th October 2016 / 9:13 pm

    What a lovely gift for her, they sound like a great charity

    • admin
      12th October 2016 / 10:00 pm

      Ideal gift for her, they are a great charity x

  18. Melissa major
    12th October 2016 / 9:43 pm

    Smile for me sounds like an amazing charity! Glad it made your daughter happy

    • admin
      12th October 2016 / 9:59 pm

      It is a great charity and it did make her smile x

  19. 27th January 2018 / 11:08 am

    What a wonderful charity this is. So very thoughtful of each individual cases. My heart goes out to you and your daughter. I hope she feels better soon. xx

    • admin
      27th January 2018 / 1:00 pm

      Thank you, it is a great charity and they really do put a smile on your face x

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