As regular readers ill know, my Daughter has been diagnosed with ME/CFS this year. It has been hard on us all but C has coped so well coming to terms with her illness and diagnosis.
I have not really updated much lately, she is now back in school for 3 hourly lessons a week, we have tried to increase but she just can not cope with the increase at the moment. Last Wednesday, she crashed and was in bed suffering all day. Thursday she was determined to go in for her tuition, and although she struggled she got through it. This would not be possible without the huge support of her tutor who is great with her, and C gets on well with her.
We have had another symptom emerge, with clicking and painful mouth joints, it hurts to eat and talk. On looking this up and speaking to other parents, this is a condition of ME, but also could be something else which presents itself like ME. So am waiting to get her in to see our GP who understands the condition.
So as you can probably gather she has been having a pretty rough time of it lately. So when the doorbell rang on Saturday morning and our lovely postman handed me a parcel for C, I could see through the wrapper that it was a parcel from Smile For ME. This is a charity where you can nominate a child who has this chronic illness, tell them a bit about what they like and they send out a present tailor made for what they like.
Her parcel contained 5 gifts all wrapped in the Smile For ME paper with a little gift tag (excuse the bad photos but her curtains were closed due to the light affecting her and she wanted to draw).
Smile For ME, is a charity that are able to send these gifts to put a smile on a childs face, by working hard through fundraising and donations.
Please if you have a spare few minutes visit there site and see all the good work they do.
I can not thank them enough for the smile they put on C’s face and it was like they knew she was going through a rough patch and struggling.