I need to apologise as have not been keeping up with my weekly posts, so thought I would do an update for you all, as I know a lot of you do keep up with the weekly updates.
It has been a few weeks since I last did a weekly update, I have been having quite a stressful time, definitely living up to the name of StressedMum.
I have been having a few emotional times and fighting with various professionals, but finally things seem to be coming together and hopefully, improving.
My Daughter has been having a very rough time, as her medication was starting not to work, so she has been suffering with migraines constantly and leg pains, I had heard of a medication that a lot of other children with ME/CFS has been put on and once dosage sorted it really does help. Finally after a lot of phone calls and trips to the GP we have been put on it to try. Unfortunately, it takes time to start working properly so I have am sitting up until quite late while she has been settling.
As you all know, education has been quite a no go since being ill. Today, I had a meeting in school and a plan has been put into place to start in September. I have been very lucky with my Daughters school, that they have been understanding of her illness and no pressurised us at all. I was wanting home tuition with the understanding she can integrate into school when she was able too. We are starting off with 3 x 1 hour sessions a week to be reviewed with home tuition and maybe one session at school in a quiet room, with the tutor and bring her friends in for part of it. After discussing it and thinking further, we may go for all the sessions in school, as it might make her feel a bit more ‘normal’. But this is still to be discussed.
We have also had the boys staying various weekends, which is lovely and I love having all my children around, and my Daughter loves her brothers being here and fussing over her.
We were supposed to be going to Cornwall for a few days this weekend, but sadly have cancelled (well postponed) due to my Daughter, but we will be going later in the year.
I was also very happy last week, to post about my first years blog anniversary, that to me is a major achievement that through all this, I have maintained my blog and have built up such a lovely supportive following (although I prefer friends), as you are all amazing and your messages have always made me smile. So once again thank you 🙂
Now for me to catch up on you, have you been up to anything nice?