I can not believe another week has flown by us, and it is time for my weekly update.
It has been quite a rollercoaster and emotional week this week. My Daughter managed to go into school on Tuesday afternoon, but could not stay for her full 2 hours and I got a call to pick her up early.
Wednesday we had our CAHMS appointment, and nothing prepared me for just how the meeting would go. We went along and had to wait a bit as they had an emergency, so I sat answering my Daughters questions on what it was all about, I had no idea and tbh thought it would be a waste of time. We finally go into our meeting and sat chatting with the person seeing us, who was lovely. She asked loads of questions and both myself and my Daughter answered, she asked if maybe we had thought of counselling and I said no, but thought it wasn’t needed, I explained to my Daughter what it was and she just shrugged and said no. We carried on with the meeting and talked some more, and then she asked my Daughter a question, that hurt me so much. She asked how she felt about her illness and she answered she was scared and started crying, she opened up and cried her little heart out, by this stage while rummaging through my handbag for tissues I was crying as well. We have always been honest and have talked about how she is feeling, but she has never said any of the things she spoke about in there. We spoke again about counselling, and I explained I could be there if she wanted, but it might be worth going in on a one to one with the counsellor as they are not personally involved, she agreed to it, and I am so glad she did, as she obviously is not coping as well as we thought she was. The appointment was left that we need to speak to our GP or Consultant to arrange it, and if not to go back to see her and they will arrange the counselling.
I had to take her to see the GP regarding pain she is having, and to discuss medication, so we asked then, as they have not heard from CAHMS yet, they can not do anything and it is usually them that arrange it. So got to contact them and see what happens next.
I have also been having a battle with school regarding her education, I am very lucky to have a made a great new friend who is a huge support and 3 years ahead of me, she is giving me so much help and support and information I need. I have been emailing school regarding further support and maybe a home tutor for now, and also sent a copy of a letter that was sent out to all Head Teachers in September regarding pupils with ME/CFS, and have also emailed someone else who is going to speak to me next week. I think once this is sorted things will be easier for my Daughter.
After the CAHMS appointment I came home and my Daughter was totally wiped, so she went to bed to rest, my husband took me out as he could see just how affected I was, and meant we could talk openly without ears listening. So my Daughter stayed with my parents and I had a few drinks and amazing cocktail.
We still have not got to our swimming date as she has not been able to, I have been offering her another girls trip out but that is on hold.
So as you can see I have been very quiet again this week, but because I have been on a few missions and on a one woman crusade.
Hopefully next week, I will have some encouraging news, but I have a lot of things to post this week, and you will probably get bored of me.
Hope you have all had a good week