Today my news feed on all my social media platforms has been over run with #MillionsMissing.
It is all about showing support to those suffering with ME/CFS and showing what sufferers are missing. The aim is to post a pair of shoes with the #MillionsMissing and write a note about what you are missing.
The picture of my Daughters shoes look brand new, unfortunately they are not :(, and I have seen hundreds of other pictures exactly the same, just different shoes.
#MillionsMissing represents the millions of ME/CFS missing from their careers, social lives and school and to represent the lack of research into this chronic illness. A lot of professionals refuse to believe this is an actual illness and lack proper training to diagnose and help patients. Also to promote social understanding from friends and family who have no idea what this illness is or how it affects sufferers.
Today the millions of sufferers around the world are urged to post a picture with the #MillionsMissing or if they are able, attend a protest to about the lack of government funding, medical and public education, that leaves patients with no relief
Today, seeing all these pictures and reading everyones stories, which I can relate to through my Daughter it has really affected me. I posted my Daughters shoes with the hashtags #MillionsMissing #Missing School and #Missing Life. She is now into her third week of being off school, a trip out at the weekend has knocked it out of her and all she did was sit in her wheelchair. This is no life for a 12 year old and it breaks my heart to see her wiped out day after day and in pain daily and there is nothing I can do to help her.
So if I can help raise awareness and help fight for more to be done then I will.