It is that time again for my weekly post, and an update on what has been happening in the StressedMum household.
We had problems with our car this week, luckily I was not driving and my Husband was with me, we had a nice pretty picture of a car in red, which I had never seen before, come up on our dashboard. Luckily he knew what it was and after a quick google said it was easy to fix, so he ordered the part and it did not take him long to mend once the part arrived. I hate not having a working car.
My Daughter has had a bad week and been in a lot of pain and just totally wiped out, so no school again this week, but she has been managing to do bits of school work at home. I got a bit worried about her the other night as she had severe pains, that were not normal to her, but after chatting on a facebook group it is just another side effect of her illness.
I joined a new facebook group this week, for parents of children with ME/CFS, I did a post saying hello, my name is Sam and my Daughter is 12 etc. Within minutes someone had replied asking if this is C. I was shocked as never give her name out, found out it is one of the support teachers from her primary school, so she knows her, and her son suffers with it. Which I knew in a roundabout way as her son was friends with my friends son. So we have been chatting all week, and are going to meet up for a chat and coffee. But it is lovely to have someone who knows us personally for that bit of support.
We finally got around to ordering her a wheelchair, and my husband decided to go for one she can wheel herself with as well. On Friday, we decided to christen it and I popped out with her for an hour just the two of us. I managed to get it out of the car ok, and off we went and we had no major disasters and did not crash into anyone. We got her a few treats, and it was lovely to see her smiling, this was her first trip like this since before christmas. The only disaster was when I popped into buy a few bits of shopping, you can not attach shopping bags to the handles as they get caught in the wheels, so need to look for something that attaches on the back of it somehow. The trip totally wiped her out and she spent the rest of the day/evening resting.
Her friend is desperate to push her around in her wheelchair, so I can see her social life starting to take off a bit now, she has amazing friends who are very supportive of her and look after her. I have said I will treat my Daughter and her best friend who has been amazing, to something and drop them in town and they can go off and have a treat, it will be nice for her to do something on her own again, and I know she will be fine.
I spoke a few weeks ago about applying for a mobility badge, the physio emailed in a supporting letter and it was being considered on Thursday. I got a text on Friday morning telling us she had been approved for the mobility badge. This is going to make life so much easier, and the first thing we are going to do when it comes through is go swimming, as I can park outside the doors. It will be really beneficial to her as well, and if Dad is free he is coming with us.
Yesterday, we met up with my eldest stepson, we went off to Windsor for the afternoon to see him, we haven’t seen him for a few years, but I got a hug when he turned up and then we sat chatting and it was just like we see him all the time, he has grown into such an amazing young man, who we are both very proud of. My Daughter was starting to get hungry and with McDonalds next door, I left my husband and my son in the pub to chat and I took my Daughter for something to eat. I had no idea my other stepsons girlfriend worked in there, and while waiting for the meal I stood looking at this girl, thinking I recognise you, she saw me looking and it clicked when I saw her name badge. We had a quick chat and she is coming over next weekend to stay for a few days, my Daughter loves her and they get on so well.
Last night, I was in bed catching up on Britains Got Talent, and chatting to the eldest on messenger, he said ‘Hi Mum’ this is something I never thought I would hear from him, I got a bit choked and told him that has made my day. He replied with well you are like a Mum to me. I am made up, I said I have always said I have 3 kids and this has just sealed everything. Just said I can’t jokingly wind him up with saying I am the wicked stepmum now.
So although my Daughter has had a bad week, with extra complications. It has been an amazing week, I am in such a great mood and my spirits have truly lifted. Next weekend I get to play ‘wicked stepmum’ with the younger one.
I feel the luckiest Mum in the world to have 3 such amazing children.
Hope you have all had a great week.