A Letter to my beautiful Daughter

Dear Daughter

Today is ME Awareness Day. I am writing this letter to you, to let you know how amazing both Dad and I think you are.

You have had a very rough year with being ill. There have been days and weeks, of not being able to get up out of bed. You have had times you have been so shattered you have not wanted to move. There have been days where you could not walk (or your bambi days as well call them).

How it has affected you

You have missed a lot of school through being ill. Missed out on seeing your friends everyday. Not being able to go into town on a Saturday. Or meeting up in the holidays and sleepovers. Although the wonders of the internet has meant you have been able to talk to them most days.

The appointments

You have had so many Dr appointments, blood tests over and over, and MRI scan. Which was a new experience for both of us, consultant appointments and physio.

Our fun days

We have missed our girls days and afternoons out. Days where we used to go shopping and have a drink and eat cake. Where we would just have a laugh and a proper Mum and Daughter catch up.

We have not been able to have days out as a family as it would have been no fun for you. With not being able to walk far or getting too tired far too quickly.

But, we have learnt to laugh. We laugh at your bambi days, we laugh if you get stuck as you can not walk, we have laughed at new ways to go up and down the stairs.Β  And we have turned the sadness into laughter, which as they say is the best medicine.

The tears

We have had our tears. I have sat and cuddled you when you have been down. Held you tight when you have broken your heart at being ‘different’ and wanting to be ‘normal’ and go to school and go out with your friends. We have had so many long chats about all sorts.

I have cried many tears for you. I have laid awake at night worrying about what the future holds. About how I feel so helpless as a Mum as I can not make you better and can not take away your pain. I worry about you constantly, and I have fought every step of your illness and I will carry on fighting for your needs.

But do you know what, both your Dad and myself have never been prouder of you, you are a true fighter, you have your Dad’s determination and you are trying so hard, to get back to school, to be able to go out with your friends, and I know you will do it. Β It will cost me a fortune with all the promises I have made to you on what you can do when you start to have your better days and even good days, but it will be worth every penny.

Your eyes still have that sparkle on your better days to show us you are still there, you have your cheekiness and wit, and you love nothing more than siding with Dad and ganging up on me.

Although, we have always been very close, this has brought us even closer together and as a family we will support each other and get through this, the way we know best with laughter.

With loads of love

Mum and Dad




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  1. 12th May 2016 / 8:19 pm

    This is such a lovely letter – it is hard to think much of yourself when you are stuck in bed. x

  2. Charli Bruce
    12th May 2016 / 8:42 pm

    You guys are just such an incredibly strong family and your daughter sounds like such a wonderful brave soul, I would be as incredibly proud as you guys are if she was my daughter xx

  3. Harriet from Toby & Roo
    12th May 2016 / 9:07 pm

    This is so beautiful and heartfelt. You should 100% save it and gift it to her when she is older. It will mean so so much! H x

  4. 12th May 2016 / 9:42 pm

    Such a beautiful letter and I can’t believe how strong you, your daughter and the rest of your family are x

    • admin
      13th May 2016 / 12:42 pm

      Thank you, believe me I have not been strong all of the time, it has been hard, but never showed my Daughter any of this x

    • admin
      13th May 2016 / 12:41 pm

      Thank you x

  5. 13th May 2016 / 2:14 am

    What an incredibly touching post. I do hope you save this for your daughter to read when she’s older xxx

    • admin
      13th May 2016 / 12:40 pm

      Thank you, I will show her one day when she is older x

  6. 13th May 2016 / 5:52 am

    Aw, how lovely! Sending you all lots of strength. It can’t be easy.

    • admin
      13th May 2016 / 12:40 pm

      Thank you x

  7. 13th May 2016 / 10:36 am

    You so have the right attitude and thank goodness as you say for the internet so your daughter can stay connected to her friends!

    • admin
      13th May 2016 / 12:39 pm

      Thank you, the internet has been such a fantastic thing for her as she can still keep in contact and not feel so isolated x

  8. 13th May 2016 / 2:24 pm

    I can’t imagine how difficult it must be for you and your daughter, I’m glad that you are still able to find happiness and laughter though πŸ™‚

    • admin
      13th May 2016 / 3:07 pm

      We have always had a laugh so it just became natural to laugh our way through her illness, it also keeps her spirits up as well x

    • admin
      13th May 2016 / 3:06 pm

      Thank you, she is such determination in her x

  9. Hannah
    13th May 2016 / 4:42 pm

    Such a beautiful and touching post. She sounds like a very strong girl x

    • admin
      13th May 2016 / 6:58 pm

      Thank you, she is a tough little thing x

    • admin
      14th May 2016 / 9:09 am

      Thank you, she is amazing with how she is coping x

  10. 13th May 2016 / 5:19 pm

    Lovely post and letter, you daughter sounds a wee star x

    • admin
      13th May 2016 / 6:57 pm

      Thank you, she is a star we are so proud of her x

    • admin
      14th May 2016 / 9:08 am

      Thank you, she is a star πŸ™‚ x

  11. 13th May 2016 / 7:04 pm

    This is so beautiful. Sometimes it is easier to write down words rather than try and fight through tears and remember things you had thought of beforehand.
    Keep fighting together x

    • admin
      14th May 2016 / 3:36 pm

      Thank you, we will continue to fight and I will continue to fight on her behalf and know one day she will be better x

  12. 13th May 2016 / 9:25 pm

    What a lovely letter, it must be very hard for you and your family.

    • admin
      14th May 2016 / 3:33 pm

      Thank you, I think it was harder to start with than it is now, although it is sometimes lonely and very hard to not feel down x

  13. 13th May 2016 / 11:31 pm

    Such beautiful words! I love how you try to make the best out of a bad situation. You have to stay strong and have a laugh even when it seems like the hardest possible thing to do πŸ™‚

    • admin
      14th May 2016 / 3:31 pm

      Thank you, I am a firm believer of laughter is the best medicine as it really does lift the mood, and it helps with my Daughter, and we try to laugh about her condition rather than feel down about it, and it seems to be working with her mood x

  14. Leoniiamber
    14th May 2016 / 6:45 am

    Lovey letter! You are all so strong and it’s great you all have each other to get by keep going lovely xx

    • admin
      14th May 2016 / 3:29 pm

      Thank you, we are a very close family which really does help x

  15. 14th May 2016 / 7:01 am

    Such a beautiful post. Your daughter is way too young to be going through things like this not that anyone at any age should. I’m sure with your support she’ll win xx

    • admin
      14th May 2016 / 3:29 pm

      Thank you, we are looking for that bright shining light at the end of the tunnel, and we know one day we will get there x

  16. 14th May 2016 / 7:49 am

    It’s an emotional letter. I’m sorry your daughter is going through a hard time, I hope she will be better soon.

    • admin
      14th May 2016 / 3:28 pm

      Thank you, hopefully she will start to have more better days than bad days x

  17. 14th May 2016 / 2:03 pm

    Lovely! reminds me of my letter exchange with my father though. Your daughter is lucky to have a sweet mum like you.

    • admin
      14th May 2016 / 3:27 pm

      Thank you πŸ™‚ x

  18. 14th May 2016 / 3:04 pm

    What a really lovely letter hun, I hope your daughter gets to read this one day x

    • admin
      14th May 2016 / 3:22 pm

      Thank you, I will save it for her to read one day x

  19. Rebecca Smith
    14th May 2016 / 4:29 pm

    What a beautiful letter. Your daughter is lucky to have such caring and loving parents xx

    • admin
      15th May 2016 / 11:04 am

      Thank you, we will do anything we can to help her x

  20. 14th May 2016 / 7:00 pm

    What a lovely letter, I’m sure it will mean a great deal to your daughter. Wishing your family all the best x

    • admin
      15th May 2016 / 11:03 am

      Thank you x

  21. Vicky
    14th May 2016 / 7:38 pm

    Totally beautiful letter, brought a lump to my throat. Your daughter is obviously a total super star, will be a wonderful moment when she one day reads it X

    • admin
      15th May 2016 / 11:02 am

      Thank you, she really is a star she amazes us with her determination x

  22. 14th May 2016 / 8:11 pm

    Beautiful letter! I’m sure she appreciates everything you said in it.

    • admin
      15th May 2016 / 11:02 am

      Thank you x

  23. Natasha Mairs
    15th May 2016 / 12:21 pm

    This is such a lovely letter. When I was at school their was a girl in my class who had ME and she really struggled to keep up with her work,.

    • admin
      15th May 2016 / 7:38 pm

      It is hard, but if she is having a bad day, she has work she can do on the computer at home now, so we just do a bit at home, we did maths on Friday and I learnt something, so is good for me as well x

  24. 15th May 2016 / 1:14 pm

    What an absolutely lovely letter to your daughter. I wasn’t really aware.of this condition until in read your posts. So you are doing a good job on raising awareness

    • admin
      15th May 2016 / 7:37 pm

      Thank you, I am glad I have made a bit of a difference in raising awareness.

  25. 15th May 2016 / 4:50 pm

    It is amazing how support you have given her as a family and how you continue to encourage her even when she is so sick. I hope she gets better as soon as possible but I know it will be a long road to recovery x

    • admin
      15th May 2016 / 7:36 pm

      Thank you, we do nothing special but keep her going, she has had a rough week this week and a bad day today, but hopefully tomorrow will be a better day x

  26. 16th May 2016 / 7:01 am

    An absolutely heartbreaking yet beautiful letter! I wish you and your family lots of love and hope your daughter startsto get stronger xx

    • admin
      16th May 2016 / 8:15 am

      Thank you, hopefully she will start to have more better days soonx

  27. Helen Costello
    16th May 2016 / 11:37 am

    What a lovely letter in such difficult circumstances. You sound like a very strong family, especially trying to make the best out of the situation. Hoping your daughter has a future of better health.

    • admin
      16th May 2016 / 1:09 pm

      Thank you, we are a very close family and it does help, hopefully we will start to see more better days than bad days x

  28. 16th May 2016 / 10:44 am

    aw your all so very strong this must have been hard to write

    • admin
      16th May 2016 / 1:10 pm

      I did get a bit teary, but it is hard especially on her bad days as I have to be the strong and happy encouraging one x

  29. 16th May 2016 / 12:43 pm

    This is a really beautiful letter πŸ™‚ You’re right to be proud of your daughter for being strong in face of this terrible illness and I hope that your encouragement keeps her afloat!

    • admin
      16th May 2016 / 1:08 pm

      Thank you, I am hoping it will x

  30. Ickle Pickle
    16th May 2016 / 7:45 pm

    Oh hun this is so beautiful. As you know I have followed your journey so far, and I think you are incredible – as is your daughter. I hope the future is brighter for you all. Huge hugs, Kaz x x

    • admin
      17th May 2016 / 8:48 am

      Thank you, you would do just the same for your kids, it is so hard at times though watching them in pain or ill and not knowing when they will have a better day x

  31. 17th May 2016 / 10:55 pm

    Aw this is a lovely letter to your daughter. It makes me sad to hear of the difficulties some families face. I met a lovely lady on the train today whose little girl is only 18 months old and was on her way to have a brain scan as she has a large blood clot on the brain and it made me hold my kids that little bit tighter for a little bit longer tonight, they are so precious. Hugs xx

    • admin
      18th May 2016 / 11:37 am

      Thank you, we all take health for granted, and it isn’t until something happens or you read or speak to someone who has health problems and it really makes you think and makes you so grateful.

  32. 23rd May 2016 / 8:39 pm

    What an emotional letter. I think as parents one of the hardest things can be the helplessness we feel when our children are poorly. To have a child with a chronic illness must be so hard at times, with the whole family affected. But it sounds as though you have an amazing relationship and I am sure that you must be so proud of your daughter too. Sending lots of love- thank you for sharing your story xx

    • admin
      24th May 2016 / 9:42 am

      Thank you, the helplessness is very hard but we do try to laugh our way through a lot of it, she has such an amazing personality she really does amaze us.

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