Today is ME Awareness Day. I am writing this letter to you, to let you know how amazing both Dad and I think you are.
You have had a very rough year with being ill. There have been days and weeks, of not being able to get up out of bed. You have had times you have been so shattered you have not wanted to move. There have been days where you could not walk (or your bambi days as well call them).
How it has affected you
You have missed a lot of school through being ill. Missed out on seeing your friends everyday. Not being able to go into town on a Saturday. Or meeting up in the holidays and sleepovers. Although the wonders of the internet has meant you have been able to talk to them most days.
You have had so many Dr appointments, blood tests over and over, and MRI scan. Which was a new experience for both of us, consultant appointments and physio.
Our fun days
We have missed our girls days and afternoons out. Days where we used to go shopping and have a drink and eat cake. Where we would just have a laugh and a proper Mum and Daughter catch up.
We have not been able to have days out as a family as it would have been no fun for you. With not being able to walk far or getting too tired far too quickly.
But, we have learnt to laugh. We laugh at your bambi days, we laugh if you get stuck as you can not walk, we have laughed at new ways to go up and down the stairs. And we have turned the sadness into laughter, which as they say is the best medicine.
We have had our tears. I have sat and cuddled you when you have been down. Held you tight when you have broken your heart at being ‘different’ and wanting to be ‘normal’ and go to school and go out with your friends. We have had so many long chats about all sorts.
I have cried many tears for you. I have laid awake at night worrying about what the future holds. About how I feel so helpless as a Mum as I can not make you better and can not take away your pain. I worry about you constantly, and I have fought every step of your illness and I will carry on fighting for your needs.
But do you know what, both your Dad and myself have never been prouder of you, you are a true fighter, you have your Dad’s determination and you are trying so hard, to get back to school, to be able to go out with your friends, and I know you will do it. It will cost me a fortune with all the promises I have made to you on what you can do when you start to have your better days and even good days, but it will be worth every penny.
Your eyes still have that sparkle on your better days to show us you are still there, you have your cheekiness and wit, and you love nothing more than siding with Dad and ganging up on me.
Although, we have always been very close, this has brought us even closer together and as a family we will support each other and get through this, the way we know best with laughter.
With loads of love
Mum and Dad