I thought I would incorporate my weekly post with my Goodbye March – Hello April post and do a two for one.
Spring has finally arrived, it is so nice to have the sunshine although not quite flip flop weather yet.
So March, has been a struggle for us my Daughter has missed so much school now, and has had times where she could barely walk, we now refer to these days as her Bambi days. She started physio just over a week ago and she is really struggling with the exercises, but laughs at me doing them along with her, she is trying but it is hard seeing her in so much pain and crying with the pain. Her Consultant rang me this week so I could update him with how she is, he is arranging her to have a neurology appointment just to rule out anything that might have been missed in her MRI, but he reckons it will all come back ok, and then is going to fully diagnose, so that she can then get the support and help she needs. He is also going to write to her school asking for a support plan to be put in place for her, which will help a lot. Not sure how I will feel when the final diagnosis is made it will be relief and sadness.
Yesterday, which I posted about in my Amazing Day post, she blew me away, she walked up to the end of our garden and went in the hot tub for a bit and then walked back, she looked shattered after, but then she wanted to do something else, so as everyone was busy, we popped to Tesco, she held onto the trolley and we very slowly walked around getting her treats along the way. It totally knocked it out of her and she is suffering today, but did walk to the end of the garden and back, before collapsing into bed. I am so proud of her.
I have had quite an emotional month, it has all really got to me I have had lots of silent tears and my heart breaking even more. I hide it from everyone as I need to be strong or she will pick up on it and it will not help her.
I have surprised myself, and much to my Dads amazement for the first time in my life, started taking an interest in the garden, yes me, gardening. I have painted the garden fence, potted plants moved stones and made a rockery, and yesterday Tesco had loads of plants reduced and I got £30 worth of plants for less than £5, so came home and presented them to my husband, asking what are we going to do with them.
April, is going to be along the same lines as March I think, although I do have my birthday to look forward too, and already have a night out planned with friends and we will stay over at their house, depending on how my Daughter feels, she may come with us and sit in with their Daughter while we are out (they have an older brother who will stay in with them), or she can stay with my parents. But a night out is always nice and I am looking forward to it already.
How has your March been?