Another week has passed and time again for my weekly update. This week has been full of firsts for me.
I will start with an update on my Daughter for all those following how she is doing, she is no better, I have spent the week trying to speak to her Consultant with no joy. Our GP decided to refer her to CAHMS and I spoke to them on Monday, but she said they probably couldn’t help after I described about her illness and what we wanted, but do have a telephone appointment and a face to face appointment booked in case. My Daughter had her first physio appointment on Thursday morning, as parking is a nightmare, I dropped my Daughter and Husband at the doors so she didn’t have too far to go and picked them up after the appointment. Although formal diagnosis has not been made yet, her hospital notes are saying different, so it does look as if she has ME.
As I could not get to sleep Wednesday evening, I found myself at 2am Thursday morning emailing into her school again, and spoke to them on Thursday. They can not put any plan in place to help with her education until they have a letter confirming formal diagnosis. So I am stuck with what to do. As she can not cope with school or getting around, but they can not do anything much either. I did say about wanting her in school and maybe doing lunchbreak as well so she can socialise as well. am speaking to them again after Easter to see where we go.
She had a friend for a sleepover last night and it was lovely to hear chat and laughter, you could see in her face the pain and tiredness but she fought it so hard.
I have had a few firsts this week, I posted the other day about something I never thought I would say, and that was enjoying cleaning, I spent the afternoon cleaning my Daughters bedroom, stopping to chat and do some puzzles and we had so much fun, that I actually enjoyed myself. The rest of the housework I have been doing I have not enjoyed at all, so it didn’t last long.
The other thing I have done that everyone who knows me knows I do not get involved with this at all, is gardening. I just hate the mud, the dirt and pointless weeding. But I painted the garden fence, and am really pleased with how lovely it looks. I potted some plants into tubs, sorted out our herbs and it is all starting to look lovely now. I just need to keep everything alive now.
I am also thrown with the days this weekend, yesterday I thought it was Saturday and today I think it is Sunday, I know I am not alone in this though, as everyone seems to be finding it the same.
Hope you have all had a good week and enjoy the Easter Weekend x